Dementia-related stigma > Wave 1
Longitudinal Wave
General Information
Title
Wave 1
Project Number
370.1
Abstract
This study focuses on the stigma that exists in Dutch society about dementia and dementia-related factors. This is the first wave of two waves.
Longitudinal Type
Longitudinal Wave
Begin date
04-12-2023
End date
31-12-2023
Researcher
Anne Kolmans (Radboud University Medical Center); Sascha Bolt (Tilburg University, Tranzo)
Publisher
Centerdata
Copyright
© 2025 Centerdata
Funding Organization
ODISSEI
OCW (Domeinplan SSH)
Tilburg University, Tranzo
OCW (Domeinplan SSH)
Tilburg University, Tranzo
DOI
https://doi.org/10.57990/dhaj-rt59
Datasets and documentation
View Documentation
Codebook in English
Codebook in Dutch
Data Files
English SPSS file
English STATA file
English CSV file
Variables
| Variable name | Variable Label | Variable Type |
|---|---|---|
| nomem_encr | Number of the household member encrypted | directly measured |
| yz23a_m | Year and month of the field work period | directly measured |
| yz23a001 | I have watched a movie or television show in which a character depicted a person with dementia. | directly measured |
| yz23a002 | My job involves providing services/treatment for persons with dementia. | directly measured |
| yz23a003 | I have observed in passing, a person I believe may have had dementia. | directly measured |
| yz23a004 | I have observed persons with dementia on a frequent basis. | directly measured |
| yz23a005 | I have dementia. | directly measured |
| yz23a006 | I have worked with a person who had dementia at my place of employment. | directly measured |
| yz23a007 | I have never observed a person that I was aware had dementia. | directly measured |
| yz23a008 | My job includes providing services to persons with dementia. | directly measured |
| yz23a009 | A friend of the family has dementia. | directly measured |
| yz23a010 | I have a relative who has dementia. | directly measured |
| yz23a011 | I have watched a documentary on the television about dementia. | directly measured |
| yz23a012 | I live with a person who has dementia. | directly measured |
| yz23a013 | I feel confident around people with dementia. | directly measured |
| yz23a014 | I am comfortable touching people with dementia. | directly measured |
| yz23a015 | I feel relaxed around people with dementia. | directly measured |
| yz23a016 | I am afraid of people with dementia. | directly measured |
| yz23a017 | People with dementia should always be supervised. | directly measured |
| yz23a018 | People with dementia are unpredictable. | directly measured |
| yz23a019 | People with dementia are very much like children. | directly measured |
| yz23a020 | People with dementia are incapable of making any personal decisions. | directly measured |
| yz23a021 | People with dementia are no longer themselves because they have dementia. | directly measured |
| yz23a022 | People with dementia can enjoy life. | directly measured |
| yz23a023 | People with dementia can feel when others are kind to them. | directly measured |
| yz23a024 | It is possible to enjoy interacting with people with dementia. | directly measured |
| yz23a025 | People with dementia are a burden to their family. | directly measured |
| yz23a026 | People with dementia are a burden on the healthcare system. | directly measured |
| yz23a027 | I would exclude people with dementia from activities. | directly measured |
| yz23a028 | I would ignore people with dementia. | directly measured |
| yz23a029 | When people get older, they need to lower their expectations of how healthy they can be. | directly measured |
| yz23a030 | The human body is like a car: when it gets older, it gets worn out. | directly measured |
| yz23a031 | Having more aches and pains is an accepted part of aging. | directly measured |
| yz23a032 | Every year that people age, their energy levels go down a little more. | directly measured |
| yz23a033 | I expect that as I get older I will spend less time with friends and family. | directly measured |
| yz23a034 | Being lonely is just something that happens when people get old. | directly measured |
| yz23a035 | As people get older they worry more. | directly measured |
| yz23a036 | It’s normal to be depressed when you are old. | directly measured |
| yz23a037 | I expect that as I get older I will become more forgetful. | directly measured |
| yz23a038 | It’s an accepted part of aging to have trouble remembering names. | directly measured |
| yz23a039 | Forgetfulness is a natural occurrence just from growing old. | directly measured |
| yz23a040 | It is impossible to escape the mental slowness that happens with aging. | directly measured |
| yz23a041 | How would you react to a person with dementia? Please indicate the extent to which you would feel this way. I feel fear. | directly measured |
| yz23a042 | How would you react to a person with dementia? Please indicate the extent to which you would feel this way. I feel pity. | directly measured |
| yz23a043 | How would you react to a person with dementia? Please indicate the extent to which you would feel this way. I react angrily. | directly measured |
| yz23a044 | How would you react to a person with dementia? Please indicate the extent to which you would feel this way. I feel annoyed. | directly measured |
| yz23a045 | How would you react to a person with dementia? Please indicate the extent to which you would feel this way. I feel the need to help this person. | directly measured |
| yz23a046 | How would you react to a person with dementia? Please indicate the extent to which you would feel this way. I experience incomprehension. | directly measured |
| yz23a047 | How would you react to a person with dementia? Please indicate the extent to which you would feel this way. I feel insecure. | directly measured |
| yz23a048 | How would you react to a person with dementia? Please indicate the extent to which you would feel this way. I feel sympathy. | directly measured |
| yz23a049 | How would you react to a person with dementia? Please indicate the extent to which you would feel this way. Makes me feel uncomfortable. | directly measured |
| yz23a050 | How could you describe a person with dementia? Try to form your answer in one or two sentences. | directly measured |
| yz23a051 | How do you interact with people with dementia? Try to form your answer in one or two sentences. | directly measured |
| yz23a052 | Earlier in this questionnaire you indicated that you have a family member/friend/acquaintance with dementia. Has your relationship with this person changed since he/she got dementia? | directly measured |
| yz23a053 | How has this relationship changed? | directly measured |
| yz23a054 | Was it difficult to answer the questions? | directly measured |
| yz23a055 | Were the questions sufficiently clear? | directly measured |
| yz23a056 | Did the questionnaire get you thinking about things? | directly measured |
| yz23a057 | Was it an interesting subject? | directly measured |
| yz23a058 | Did you enjoy answering the questions? | directly measured |
| yz23a059 | Starting date questionnaire | directly measured |
| yz23a060 | Starting time questionnaire | directly measured |
| yz23a061 | End date questionnaire | directly measured |
| yz23a062 | End time questionnaire | directly measured |
| yz23a063 | Duration in seconds | directly measured |
Questions
The metadata for the questions in this study have not yet been published.
Response Information
Response Overview
Selected number of household members: 670 (100.0%)Non-response: 117 (17.5%)
Response: 553 (82.5%)
Complete: 553 (82.5%)
Incomplete: 0 (0.0%)
Collection Events
Period
04-12-2023 to 31-12-2023
Sample
Stratified sample by age of 670 panel members aged 16 years or older who completed the core study Personality in May/June 2023.
Collection Mode
internet survey
Fieldwork Note
A reminder was sent twice to non-respondents.