Communicating personalized health information

Single Wave Study

General Information

Title

Project Number

265

Abstract

This study is about communicating about risks and side-effects of medical treatments. The goal is to understand how people use and interpret this information.

Longitudinal Type

Single Wave Study

Begin date

05-04-2021

End date

27-04-2021

Topics

Health and well-being (LISS)

Researcher

Ruben Vromans (Tilburg University)

Publisher

Centerdata

Funding Organization

ODISSEI

DOI

https://doi.org/10.17026/dans-22s-6gdj

Datasets and documentation

View Documentation

Codebook in English

codebook_ua21a_EN_1.0.pdf

Codebook in Dutch

codeboek_ua21a_NL_1.0.pdf

Data Files

English SPSS file

ua21a_EN_1.0p.sav

English STATA file

ua21a_EN_1.0p.dta

English CSV file

ua21a_EN_1.0p.csv

Variables

Variable name	Variable Label	Variable Type
nomem_encr	Number of the household member encrypted	preloaded
ua21a_m	Year and month of the field work period	constructed
ua21a001	Random number: condition to which respondents were assigned to determine which pictures they saw in the presented scenarios	constructed
ua21a002	Preload variable: Gender of respondent	constructed
ua21a003	Permutation variable: Which scenario was shown and asked out first?	constructed
ua21a004	Permutation variable: Which scenario was shown and asked out second?	constructed
ua21a005	Permutation variable: Which scenario was shown and asked out third?	constructed
ua21a006	Permutation variable: Which item was shown first at ua21a049 - ua21a052?	constructed
ua21a007	Permutation variable: Which item was shown second at ua21a049 - ua21a052?	constructed
ua21a008	Permutation variable: Which item was shown third at ua21a049 - ua21a052?	constructed
ua21a009	Permutation variable: Which item was shown fourth at ua21a049 - ua21a052?	constructed
ua21a010	Permutation variable: Which item was shown first at ua21a053 – ua21a056?	constructed
ua21a011	Permutation variable: Which item was shown second at ua21a053 – ua21a056?	constructed
ua21a012	Permutation variable: Which item was shown third at ua21a053 – ua21a056?	constructed
ua21a013	Permutation variable: Which item was shown fourth at ua21a053 – ua21a056?	constructed
ua21a014	Permutation variable: Which item was shown first at bij ua21a070 - ua21a073?	constructed
ua21a015	Permutation variable: Which item was shown second at ua21a070 - ua21a073?	constructed
ua21a016	Permutation variable: Which item was shown third at ua21a070 - ua21a073?	constructed
ua21a017	Permutation variable: Which item was shown fourth at ua21a070 - ua21a073?	constructed
ua21a018	Mobile layout	constructed
ua21a019	Was shown information about colon cancer in the cholesterol scenario	constructed
ua21a020	[Skin cancer] What do you think the probability is that you will experience this side effect after the treatment?	directly measured
ua21a021	[Skin cancer] How likely is it that you will experience this side effect after your treatment?	directly measured
ua21a022	[Skin cancer] How frightening do you find the information about this side effect?	directly measured
ua21a023	[Skin cancer] How worrying do you find the information about this side effect?	directly measured
ua21a024	[Skin cancer] How grave do you find the information about this side effect?	directly measured
ua21a025	[Skin cancer] What do you think is the probability that you will experience this side effect after the treatment? Please enter a number between 0 and 100.	directly measured
ua21a026	[Skin cancer] The information about the side effect feels like it was written for me personally.	directly measured
ua21a027	[Skin cancer] The way the information about the side effect was provided is relevant to me.	directly measured
ua21a028	[Skin cancer] Based on the information you just read, how likely is it that you would choose this treatment?	directly measured
ua21a029	[Increased cholesterol] What do you think the probability is that you will experience this side effect after the treatment?	directly measured
ua21a030	[Increased cholesterol] How likely is it that you will experience this side effect after your treatment?	directly measured
ua21a031	[Increased cholesterol] How frightening do you find the information about this side effect?	directly measured
ua21a032	[Increased cholesterol] How worrying do you find the information about this side effect?	directly measured
ua21a033	[Increased cholesterol] How grave do you find the information about this side effect?	directly measured
ua21a034	[Increased cholesterol] What do you think is the probability that you will experience this side effect after the treatment? Please enter a number between 0 and 100.	directly measured
ua21a035	[Increased cholesterol] The information about the side effect feels like it was written for me personally.	directly measured
ua21a036	[Increased cholesterol] The way the information about the side effect was provided is relevant to me.	directly measured
ua21a037	[Increased cholesterol] Based on the information you just read, how likely is it that you would choose this treatment?	directly measured
ua21a038	[Colon cancer] What do you think the probability is that you will experience this side effect after the treatment?	directly measured
ua21a039	[Colon cancer] How likely is it that you will experience this side effect after your treatment?	directly measured
ua21a040	[Colon cancer] How frightening do you find the information about this side effect?	directly measured
ua21a041	[Colon cancer] How worrying do you find the information about this side effect?	directly measured
ua21a042	[Colon cancer] How grave do you find the information about this side effect?	directly measured
ua21a043	[Colon cancer] What do you think is the probability that you will experience this side effect after the treatment? Please enter a number between 0 and 100.	directly measured
ua21a044	[Colon cancer] The information about the side effect feels like it was written for me personally.	directly measured
ua21a045	[Colon cancer] The way the information about the side effect was provided is relevant to me.	directly measured
ua21a046	[Colon cancer] Based on the information you just read, how likely is it that you would choose this treatment?	directly measured
ua21a047	Imagine you were to receive information about the risks of side effects after a treatment. To what extent would you want to know your personal risk of side effects after a treatment?	directly measured
ua21a048	Suppose you were to receive information about your personal probability of experiencing a side effect after receiving treatment. Would you also want to know what your personal risk is compared to the average risk?	directly measured
ua21a049	How good are you at calculations using fractions?	directly measured
ua21a050	How good are you at calculations using percentages?	directly measured
ua21a051	Hoe well can you calculate a 15% tip?	directly measured
ua21a052	How well can you calculate the price of a T-shirt if it has a 25% discount?	directly measured
ua21a053	When you read the newspaper, how helpful do you find the tables and graphs used to illustrate articles?	directly measured
ua21a054	Imagine someone tells you about how likely it is that something will happen. Would you prefer them to use words (for example: “it happens rarely”) or numbers (for example: “The probability is 1%”)?	directly measured
ua21a055	Suppose you are listening to the weather forecast. Would you prefer to hear the predictions given in percentages (for example: “There is a 20% chance of rain today”) or in words (for example: “There is a small chance of rain today”)?	directly measured
ua21a056	How often do you find information in the form of numbers to be helpful?	directly measured
ua21a057	What does the following word mean? Orthodontics	directly measured
ua21a058	What does the following word mean? Reflux	directly measured
ua21a059	What does the following word mean? Chlamydia	directly measured
ua21a060	What does the following word mean? Plaque	directly measured
ua21a061	What does the following word mean? Obesity	directly measured
ua21a062	What does the following word mean? Biopsy	directly measured
ua21a063	What does the following word mean? Malaise	directly measured
ua21a064	What does the following word mean? Diaphragm	directly measured
ua21a065	What does the following word mean? Gelling agent	directly measured
ua21a066	What does the following word mean? Chiropractic	directly measured
ua21a067	What does the following word mean? Echography	directly measured
ua21a068	What does the following word mean? Flaking	directly measured
ua21a069	What does the following word mean? Ventricle	directly measured
ua21a070	Of all people who die of cancer, approximately what percentage die of colorectal, breast and prostate cancer combined?	directly measured
ua21a071	If there are 100 patients with disease X, how many more male patients are there compared to the number of female patients?	directly measured
ua21a072	Which medication leads to the largest decrease in the percentage of people who die compared to the placebo?	directly measured
ua21a073	Which treatment leads to the greatest decrease in the number of sick patients?	directly measured
ua21a074	Have you (or someone in your family) suffered from one of the following diseases or conditions in the past? Skin cancer	directly measured
ua21a075	Have you (or someone in your family) suffered from one of the following diseases or conditions in the past? High cholesterol	directly measured
ua21a076	Have you (or someone in your family) suffered from one of the following diseases or conditions in the past? Colon cancer	directly measured
ua21a077	Have you undergone any of the following treatments in the past? Operation to remove skin cancer or other type of cancer	directly measured
ua21a078	Have you undergone any of the following treatments in the past? Medication for high cholesterol	directly measured
ua21a079	Have you undergone any of the following treatments in the past? Chemotherapy for colon cancer or other type of cancer	directly measured
ua21a080	Have you experienced any of the listed side effects? Infection of the skin around the wound	directly measured
ua21a081	Have you experienced any of the listed side effects? Gastrointestinal complaints, such as nausea, vomiting or diarrhea	directly measured
ua21a082	Have you experienced any of the listed side effects? Neuropathy	directly measured
ua21a083	Was it difficult to answer the questions?	directly measured
ua21a084	Were the questions sufficiently clear?	directly measured
ua21a085	Did the questionnaire get you thinking about things?	directly measured
ua21a086	Was it an interesting subject?	directly measured
ua21a087	Did you enjoy answering the questions?	directly measured
ua21a088	Starting date questionnaire	constructed
ua21a089	Starting time questionnaire	constructed
ua21a090	End date questionnaire	constructed
ua21a091	End time questionnaire	constructed
ua21a092	Duration in seconds	derived

Questions

Questionnaire: Communicating personalized health information

The questionnaire was administered in Dutch

Browse Communicating personalized health information

Response Information

Response Overview

Selected number of household members: 2,408 (100.0%)
Non-response: 601 (25.0%)
Response: 1,807 (75.0%)
Complete: 1,778 (73.8%)
Incomplete: 29 (1.2%)

Collection Events

Period

05-04-2021 to 27-04-2021

Sample

A random sample of LISS panel members aged 16 and older who were not selected for the questionnaire ub21a (“Trauma care”).

Collection Mode

internet survey

Fieldwork Note

A reminder was sent twice to non-respondents

Publications

Effects of comparative information when communicating personalized risks of treatment outcomes: an experimental study Journal of Risk Research, 26(3), 324-343; Vromans, R. D., et al.