Retrospective informal care career > Main measurement
Single Wave Study
General Information
Title
Main measurement
Project Number
231.2
Abstract
This is a retrospective study into informal care careers. A screening questionnaire was first presented to the entire LISS panel about the provision of informal care, i.e. the provision of assistance to acquaintances with health problems. Based on the screening, a selection was made among the respondents who provided informal care. This codebook and data set concern the main measurement.
Longitudinal Type
Single Wave Study
Begin date
02-03-2020
End date
31-03-2020
Topics
Researcher
Ellen Verbakel (Radboud University Nijmegen)
Publisher
CentERdata
Copyright
© 2021 CentERdata
Funding Organization
ODISSEI
DOI
https://doi.org/10.17026/dans-xyf-v7vu
Datasets and documentation
View Documentation
Codebook in English
Codebook in Dutch
Data Files
English SPSS file
English STATA file
Variables
| Variable name | Variable Label | Variable Type |
|---|---|---|
| nomem_encr | Number of the household member encrypted | preloaded |
| si20a_m | Year and month of the field work period | constructed |
| si20a001 | Was block B completed for person 1 | derived |
| si20a002 | Was block B completed for person 2 | derived |
| si20a003 | Was block B completed for person 3 | derived |
| si20a004 | Was block B completed for person 4 | derived |
| si20a005 | Was block B completed for person 5 | derived |
| si20a006 | Was block B completed for person 6 | derived |
| si20a007 | Was block B completed for person 7 | derived |
| si20a008 | [...] Please take a moment to think about the people known to you to whom you have provided or are providing informal care on account of health issues. What is the total number of people? | directly measured |
| si20a009 | Are you still providing care to [person 1] at present? | directly measured |
| si20a010 | What [if si20a009 = 1: is / if si20a009 = 2: is/was] the nature of your relationship to [person 1]? He or she [if si20a009 = 1: is / if si20a009 = 2: is/was] my... | directly measured |
| si20a011 | What [if si20a009 = 1: is / if si20a009 = 2: is/was] the nature of your relationship to [person 1]? He or she [if si20a009 = 1: is / if si20a009 = 2: is/was] my... - Other, namely | directly measured |
| si20a012 | Is [person 1] male or female? | directly measured |
| si20a013 | When did you start providing informal care to [person 1]? Month | directly measured |
| si20a014 | When did you start providing informal care to [person 1]? Year | directly measured |
| si20a015 | When did you stop providing care to [person 1]? Month | directly measured |
| si20a016 | When did you stop providing care to [person 1]? Year | directly measured |
| si20a017 | For what reason did you stop providing care to [person 1]? Please indicate the most important reason. | directly measured |
| si20a018 | For what reason did you stop providing care to [person 1]? Please indicate the most important reason. - Another reason, namely | directly measured |
| si20a019 | For how many hours a week, on average, did you provide care...at the start of the period in which you provided care to [person 1]? | directly measured |
| si20a020 | For how many hours a week, on average, did you provide care...[if si20a009 = 1: and how many hours do you spend now? / if si20a009 = 2: ...at the end of the period in which you provided care to [person 1]?] | directly measured |
| si20a021 | What tasks did you perform at the start of the period - Companionship or emotional support | directly measured |
| si20a022 | What tasks did you perform at the start of the period - Transportation | directly measured |
| si20a023 | What tasks did you perform at the start of the period - Assistance when visiting a doctor | directly measured |
| si20a024 | What tasks did you perform at the start of the period - Administrative help | directly measured |
| si20a025 | What tasks did you perform at the start of the period - Help with housekeeping | directly measured |
| si20a026 | What tasks did you perform at the start of the period - Personal care (e.g. showering or visiting the toilet) | directly measured |
| si20a027 | What tasks did you perform at the start of the period - Nursing care (e.g. administering medicine or tending to wounds) | directly measured |
| si20a028 | What tasks did you perform at the start of the period - Arranging or coordinating care | directly measured |
| si20a029 | What tasks did you perform at the start of the period - Other care | directly measured |
| si20a030 | Tasks performed [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Companionship or emotional support | directly measured |
| si20a031 | Tasks performed [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Transportation | directly measured |
| si20a032 | Tasks performed [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Assistance when visiting a doctor | directly measured |
| si20a033 | Tasks performed [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Administrative help | directly measured |
| si20a034 | Tasks performed [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Help with housekeeping | directly measured |
| si20a035 | Tasks performed [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Personal care (e.g. showering or visiting the toilet) | directly measured |
| si20a036 | Tasks performed [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Nursing care (e.g. administering medicine or tending to wounds) | directly measured |
| si20a037 | Tasks performed [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Arranging or coordinating care | directly measured |
| si20a038 | Tasks performed [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Other care | directly measured |
| si20a039 | Care of others at the start of the period - One or more other informal care givers | directly measured |
| si20a040 | Care of others at the start of the period - One or more volunteers | directly measured |
| si20a041 | Care of others at the start of the period - Home care workers or district nurses | directly measured |
| si20a042 | Care of others at the start of the period - A private help or domestic worker | directly measured |
| si20a043 | Care of others at the start of the period - Nursing staff in care institution or hospital | directly measured |
| si20a044 | Care of others at the start of the period - No one other than me | directly measured |
| si20a045 | Care of others [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - One or more other informal care givers | directly measured |
| si20a046 | Care of others [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - One or more volunteers | directly measured |
| si20a047 | Care of others [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Home care workers or district nurses | directly measured |
| si20a048 | Care of others [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - A private help or domestic worker | directly measured |
| si20a049 | Care of others [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Nursing staff in care institution or hospital | directly measured |
| si20a050 | Care of others [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - No one other than me | directly measured |
| si20a051 | Where did [person 1] live...at the start of the period in which you provided care to [person 1]? | directly measured |
| si20a052 | Where did [person 1] live...[if si20a009 = 1: ...and where does [person 1] live now? / if si20a009 = 2: ... at the end of the period in which you provided care to [person 1]?] | directly measured |
| si20a053 | To what extent did [person 1] have problems with regard to memory, to attention span, to thinking...at the start of the period in which you provided care to [person 1]? | directly measured |
| si20a054 | To what extent did [person 1] have problems with regard to memory, to attention span, to thinking...[if si20a009 = 1: ...and how is that now? / if si20a009 = 2: ... at the end of the period in which you provided care to [person 1]?] | directly measured |
| si20a055 | To what extent did [person 1] suffer from psychological problems, such as depression or a phobia...at the start of the period in which you provided care to [person 1]? | directly measured |
| si20a056 | To what extent did [person 1] suffer from psychological problems, such as depression or a phobia...[if si20a009 = 1: ...and how is that now? / if si20a009 = 2: ... at the end of the period in which you provided care to [person 1]?] | directly measured |
| si20a057 | Tasks that [person 1] was unable to perform independently at the start of the period - Walking | directly measured |
| si20a058 | Tasks that [person 1] was unable to perform independently at the start of the period - Dressing | directly measured |
| si20a059 | Tasks that [person 1] was unable to perform independently at the start of the period - Eating | directly measured |
| si20a060 | Tasks that [person 1] was unable to perform independently at the start of the period - Housekeeping | directly measured |
| si20a061 | Tasks that [person 1] was unable to perform independently at the start of the period - Grocery shopping | directly measured |
| si20a062 | Tasks that [person 1] was unable to perform independently at the start of the period - Preparing a meal | directly measured |
| si20a063 | Tasks that [person 1] was unable to perform independently at the start of the period - No problems with these activities | directly measured |
| si20a064 | Tasks that [person 1] is/was unable to perform independently [if si20a009=1: now / if si20a009=2: at the end of the period] - Walking | directly measured |
| si20a065 | Tasks that [person 1] is/was unable to perform independently [if si20a009=1: now / if si20a009=2: at the end of the period] - Dressing | directly measured |
| si20a066 | Tasks that [person 1] is/was unable to perform independently [if si20a009=1: now / if si20a009=2: at the end of the period] - Eating | directly measured |
| si20a067 | Tasks that [person 1] is/was unable to perform independently [if si20a009=1: now / if si20a009=2: at the end of the period] - Housekeeping | directly measured |
| si20a068 | Tasks that [person 1] is/was unable to perform independently [if si20a009=1: now / if si20a009=2: at the end of the period] - Grocery shopping | directly measured |
| si20a069 | Tasks that [person 1] is/was unable to perform independently [if si20a009=1: now / if si20a009=2: at the end of the period] - Preparing a meal | directly measured |
| si20a070 | Tasks that [person 1] is/was unable to perform independently [if si20a009=1: now / if si20a009=2: at the end of the period] - No problems with these activities | directly measured |
| si20a071 | How old [if si20a009 = 1: is / if si20a009 = 2: was] [person 1] [if si20a009 = 2: when you stopped providing informal care]? If you do not know exactly, please estimate his/her age. | directly measured |
| si20a072 | I [if si20a009 = 1: have / if si20a009 = 2: had] trouble combining my everyday activities (e.g. work, housekeeping, studying, family and leisure time) with my care activities for [person 1]. | directly measured |
| si20a073 | Caring for [person 1] [if si20a009 = 1: gives / if si20a009 = 2: gave] me a good feeling. | directly measured |
| si20a074 | I [if si20a009 = 1: find / if si20a009 = 2: found] it difficult to deal with [person 1], for instance because our relationship [if si20a009 = 1: has / if si20a009 = 2: had] changed or because [...] | directly measured |
| si20a075 | My contact with friends and acquaintances has reduced as a result of my providing care to [person 1]. | directly measured |
| si20a076 | By providing care, I [if si20a009 = 1: learn / if si20a009 = 2: learned] new things. | directly measured |
| si20a077 | I [if si20a009 = 1: find / if si20a009 = 2: found] it taxing to provide care to [person 1]. | directly measured |
| si20a078 | [person 1] and I have grown closer. | directly measured |
| si20a079 | My own choices in life have been restricted by the care need of [person 1]. | directly measured |
| si20a080 | My social environment [if si20a009 = 1: appreciates / if si20a009 = 2: appreciated] me for helping [person 1]. | directly measured |
| si20a081 | I [if si20a009 = 1: experience / if si20a009 = 2: experienced] loneliness as a result of my care activity. | directly measured |
| si20a082 | My social environment [if si20a009 = 1: helps / if si20a009 = 2: helped] me by taking over some of my tasks, other than the care for [person 1]. | directly measured |
| si20a083 | I [if si20a009 = 1: experience / if si20a009 = 2: experienced] the care for [person 1] as a duty. | directly measured |
| si20a084 | if si20a010 = 1: My relationship with [person 1] [if si20a009 = 1: is suffering / if si20a009 = 2: suffered] on account of my providing care to [him/her] / if si20a010 ≠1: My relationship with my (then) partner [...] | directly measured |
| si20a085 | I [if si20a009 = 1: feel / if si20a009 = 2: felt] that it’s the right thing to do. | directly measured |
| si20a086 | There [if si20a009 = 1: isn’t / if si20a009 = 2: wasn’t] anyone else available. | directly measured |
| si20a087 | I [if si20a009 = 1: enjoy / if si20a009 = 2: enjoyed] caring for someone. | directly measured |
| si20a088 | It [if si20a009 = 1: is / if si20a009 = 2: was] expected of me. | directly measured |
| si20a089 | [if si20a009 = 1: Have you had a paid job since providing care / if si20a009 = 2: Did you have a paid job during the period that you provided care] to [person 1]? | directly measured |
| si20a090 | Did you not have a paid job in that period, because you provided care to [person 1]? | directly measured |
| si20a091 | Did work situation change because of providing care you - Did you…start working less hours? | directly measured |
| si20a092 | Did work situation change because of providing care you - Did you…stop working? | directly measured |
| si20a093 | Did work situation change because of providing care you - Did you…start doing different work? | directly measured |
| si20a094 | Did work situation change because of providing care you - Did you…start working in self-employment? | directly measured |
| si20a095 | Did work situation change because of providing care you - Did you…stop attending an education program? | directly measured |
| si20a096 | Consequences at work because of providing care - Have you…missed out on being promoted or being awarded an assignment? | directly measured |
| si20a097 | Consequences at work because of providing care - Have you…had your work duties reduced, against your will? | directly measured |
| si20a098 | I [if (si20a009 = 1 and si20a089 = 1): find / if (si20a009 = 2) or (si20a009 = 1 and si20a089 = 2): found] it stressful to combine my work with providing care to [person 1]. | directly measured |
| si20a099 | By caring for [person 1], I have developed skills that [if (si20a009 = 1 and si20a089 = 1): make / if (si20a009 = 2) or (si20a009 = 1 and si20a089 = 2): made] me better at my work. | directly measured |
| si20a100 | I [if (si20a009 = 1 and si20a089 = 1): find / if (si20a009 = 2) or (si20a009 = 1 and si20a089 = 2): found] my work a relief for the distraction it [...] from assisting [person 1]. | directly measured |
| si20a101 | I often [if (si20a009 = 1 and si20a089 = 1): feel / if (si20a009 = 2) or (si20a009 = 1 and si20a089 = 2): felt] that caring for [person 1] [...] from my performance as an employee. | directly measured |
| si20a102 | [if (si20a009 = 1 and si20a089 = 1): Does / if (si20a009 = 2) or (si20a009 = 1 and si20a089 = 2): Did] your manager show any understanding with regard to your caring for [person 1]? [...] | directly measured |
| si20a103 | [if (si20a009 = 1 and si20a089 = 1): Do / if (si20a009 = 2) or (si20a009 = 1 and si20a089 = 2): Did] your direct colleagues show any understanding with regard to your caring for [person 1]? | directly measured |
| si20a104 | [...] To what extent [if (si20a009 = 1 and si20a089 = 1): can / if (si20a009 = 2) or (si20a009 = 1 and si20a089 = 2): could] you arrange your work flexibly to combine the care for [person 1] with your work [...]? | directly measured |
| si20a105 | Forms of support while providing care - Financial support (e.g. from the personal care budget, travel expense reimbursement) | directly measured |
| si20a106 | Forms of support while providing care - Provisions that temporarily [if si20a009 = 1: take / if si20a009 = 2: took] over the care for [person 1] (e.g. day activities, night care, volunteer care). | directly measured |
| si20a107 | Forms of support while providing care - Psychological support (e.g. peer support, training course, advice) | directly measured |
| si20a108 | Are you still providing care to [person 2] at present? | directly measured |
| si20a109 | What [if si20a108 = 1: is / if si20a108 = 2: is/was] the nature of your relationship to [person 2]? He or she [if si20a108 = 1: is / if si20a108 = 2: is/was] my... | directly measured |
| si20a110 | What [if si20a108 = 1: is / if si20a108 = 2: is/was] the nature of your relationship to [person 2]? He or she [if si20a108 = 1: is / if si20a108 = 2: is/was] my... - Other, namely | directly measured |
| si20a111 | Is [person 2] male or female? | directly measured |
| si20a112 | When did you start providing informal care to [person 2]? Month | directly measured |
| si20a113 | When did you start providing informal care to [person 2]? Year | directly measured |
| si20a114 | When did you stop providing care to [person 2]? Month | directly measured |
| si20a115 | When did you stop providing care to [person 2]? Year | directly measured |
| si20a116 | For what reason did you stop providing care to [person 2]? Please indicate the most important reason. | directly measured |
| si20a117 | For what reason did you stop providing care to [person 2]? Please indicate the most important reason. - Another reason, namely | directly measured |
| si20a118 | For how many hours a week, on average, did you provide care...at the start of the period in which you provided care to [person 2]? | directly measured |
| si20a119 | For how many hours a week, on average, did you provide care...[if si20a108 = 1: and how many hours do you spend now? / if si20a108 = 2: ...at the end of the period in which you provided care to [person 2]?] | directly measured |
| si20a120 | What tasks did you perform at the start of the period - Companionship or emotional support | directly measured |
| si20a121 | What tasks did you perform at the start of the period - Transportation | directly measured |
| si20a122 | What tasks did you perform at the start of the period - Assistance when visiting a doctor | directly measured |
| si20a123 | What tasks did you perform at the start of the period - Administrative help | directly measured |
| si20a124 | What tasks did you perform at the start of the period - Help with housekeeping | directly measured |
| si20a125 | What tasks did you perform at the start of the period - Personal care (e.g. showering or visiting the toilet) | directly measured |
| si20a126 | What tasks did you perform at the start of the period - Nursing care (e.g. administering medicine or tending to wounds) | directly measured |
| si20a127 | What tasks did you perform at the start of the period - Arranging or coordinating care | directly measured |
| si20a128 | What tasks did you perform at the start of the period - Other care | directly measured |
| si20a129 | Tasks performed [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Companionship or emotional support | directly measured |
| si20a130 | Tasks performed [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Transportation | directly measured |
| si20a131 | Tasks performed [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Assistance when visiting a doctor | directly measured |
| si20a132 | Tasks performed [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Administrative help | directly measured |
| si20a133 | Tasks performed [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Help with housekeeping | directly measured |
| si20a134 | Tasks performed [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Personal care (e.g. showering or visiting the toilet) | directly measured |
| si20a135 | Tasks performed [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Nursing care (e.g. administering medicine or tending to wounds) | directly measured |
| si20a136 | Tasks performed [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Arranging or coordinating care | directly measured |
| si20a137 | Tasks performed [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Other care | directly measured |
| si20a138 | Care of others at the start of the period - One or more other informal care givers | directly measured |
| si20a139 | Care of others at the start of the period - One or more volunteers | directly measured |
| si20a140 | Care of others at the start of the period - Home care workers or district nurses | directly measured |
| si20a141 | Care of others at the start of the period - A private help or domestic worker | directly measured |
| si20a142 | Care of others at the start of the period - Nursing staff in care institution or hospital | directly measured |
| si20a143 | Care of others at the start of the period - No one other than me | directly measured |
| si20a144 | Care of others [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - One or more other informal care givers | directly measured |
| si20a145 | Care of others [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - One or more volunteers | directly measured |
| si20a146 | Care of others [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Home care workers or district nurses | directly measured |
| si20a147 | Care of others [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - A private help or domestic worker | directly measured |
| si20a148 | Care of others [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Nursing staff in care institution or hospital | directly measured |
| si20a149 | Care of others [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - No one other than me | directly measured |
| si20a150 | Where did [person 2] live...at the start of the period in which you provided care to [person 2]? | directly measured |
| si20a151 | Where did [person 2] live...[if si20a108 = 1: ...and where does [person 2] live now? / if si20a108 = 2: ... at the end of the period in which you provided care to [person 2]?] | directly measured |
| si20a152 | To what extent did [person 2] have problems with regard to memory, to attention span, to thinking...at the start of the period in which you provided care to [person 2]? | directly measured |
| si20a153 | To what extent did [person 2] have problems with regard to memory, to attention span, to thinking...[if si20a108 = 1: ...and how is that now? / if si20a108 = 2: ... at the end of the period in which you provided care to [person 2]?] | directly measured |
| si20a154 | To what extent did [person 2] suffer from psychological problems, such as depression or a phobia...at the start of the period in which you provided care to [person 2]? | directly measured |
| si20a155 | To what extent did [person 2] suffer from psychological problems, such as depression or a phobia...[if si20a108 = 1: ...and how is that now? / if si20a108 = 2: ... at the end of the period in which you provided care to [person 2]?] | directly measured |
| si20a156 | Tasks that [person 2] was unable to perform independently at the start of the period - Walking | directly measured |
| si20a157 | Tasks that [person 2] was unable to perform independently at the start of the period - Dressing | directly measured |
| si20a158 | Tasks that [person 2] was unable to perform independently at the start of the period - Eating | directly measured |
| si20a159 | Tasks that [person 2] was unable to perform independently at the start of the period - Housekeeping | directly measured |
| si20a160 | Tasks that [person 2] was unable to perform independently at the start of the period - Grocery shopping | directly measured |
| si20a161 | Tasks that [person 2] was unable to perform independently at the start of the period - Preparing a meal | directly measured |
| si20a162 | Tasks that [person 2] was unable to perform independently at the start of the period - No problems with these activities | directly measured |
| si20a163 | Tasks that [person 2] is/was unable to perform independently [if si20a108=1: now / if si20a108=2: at the end of the period] - Walking | directly measured |
| si20a164 | Tasks that [person 2] is/was unable to perform independently [if si20a108=1: now / if si20a108=2: at the end of the period] - Dressing | directly measured |
| si20a165 | Tasks that [person 2] is/was unable to perform independently [if si20a108=1: now / if si20a108=2: at the end of the period] - Eating | directly measured |
| si20a166 | Tasks that [person 2] is/was unable to perform independently [if si20a108=1: now / if si20a108=2: at the end of the period] - Housekeeping | directly measured |
| si20a167 | Tasks that [person 2] is/was unable to perform independently [if si20a108=1: now / if si20a108=2: at the end of the period] - Grocery shopping | directly measured |
| si20a168 | Tasks that [person 2] is/was unable to perform independently [if si20a108=1: now / if si20a108=2: at the end of the period] - Preparing a meal | directly measured |
| si20a169 | Tasks that [person 2] is/was unable to perform independently [if si20a108=1: now / if si20a108=2: at the end of the period] - No problems with these activities | directly measured |
| si20a170 | How old [if si20a108 = 1: is / if si20a108 = 2: was] [person 2] [if si20a108 = 2: when you stopped providing informal care]? If you do not know exactly, please estimate his/her age. | directly measured |
| si20a171 | I [if si20a108 = 1: have / if si20a108 = 2: had] trouble combining my everyday activities (e.g. work, housekeeping, studying, family and leisure time) with my care activities for [person 2]. | directly measured |
| si20a172 | Caring for [person 2] [if si20a108 = 1: gives / if si20a108 = 2: gave] me a good feeling. | directly measured |
| si20a173 | I [if si20a108 = 1: find / if si20a108 = 2: found] it difficult to deal with [person 2], for instance because our relationship [if si20a108 = 1: has / if si20a108 = 2: had] changed or because [...] | directly measured |
| si20a174 | My contact with friends and acquaintances has reduced as a result of my providing care to [person 2]. | directly measured |
| si20a175 | By providing care, I [if si20a108 = 1: learn / if si20a108 = 2: learned] new things. | directly measured |
| si20a176 | I [if si20a108 = 1: find / if si20a108 = 2: found] it taxing to provide care to [person 2]. | directly measured |
| si20a177 | [person 2] and I have grown closer. | directly measured |
| si20a178 | My own choices in life have been restricted by the care need of [person 2]. | directly measured |
| si20a179 | My social environment [if si20a108 = 1: appreciates / if si20a108 = 2: appreciated] me for helping [person 2]. | directly measured |
| si20a180 | I [if si20a108 = 1: experience / if si20a108 = 2: experienced] loneliness as a result of my care activity. | directly measured |
| si20a181 | My social environment [if si20a108 = 1: helps / if si20a108 = 2: helped] me by taking over some of my tasks, other than the care for [person 2]. | directly measured |
| si20a182 | I [if si20a108 = 1: experience / if si20a108 = 2: experienced] the care for [person 2] as a duty. | directly measured |
| si20a183 | if si20a109 = 1: My relationship with [person 2] [if si20a108 = 1: is suffering / if si20a108 = 2: suffered] on account of my providing care to [him/her] / if si20a109 ≠1: My relationship with my (then) partner [...] | directly measured |
| si20a184 | I [if si20a108 = 1: feel / if si20a108 = 2: felt] that it’s the right thing to do. | directly measured |
| si20a185 | There [if si20a108 = 1: isn’t / if si20a108 = 2: wasn’t] anyone else available. | directly measured |
| si20a186 | I [if si20a108 = 1: enjoy / if si20a108 = 2: enjoyed] caring for someone. | directly measured |
| si20a187 | It [if si20a108 = 1: is / if si20a108 = 2: was] expected of me. | directly measured |
| si20a188 | [if si20a108 = 1: Have you had a paid job since providing care / if si20a108 = 2: Did you have a paid job during the period that you provided care] to [person 2]? | directly measured |
| si20a189 | Did you not have a paid job in that period, because you provided care to [person 2]? | directly measured |
| si20a190 | Did work situation change because of providing care you - Did you…start working less hours? | directly measured |
| si20a191 | Did work situation change because of providing care you - Did you…stop working? | directly measured |
| si20a192 | Did work situation change because of providing care you - Did you…start doing different work? | directly measured |
| si20a193 | Did work situation change because of providing care you - Did you…start working in self-employment? | directly measured |
| si20a194 | Did work situation change because of providing care you - Did you…stop attending an education program? | directly measured |
| si20a195 | Consequences at work because of providing care - Have you…missed out on being promoted or being awarded an assignment? | directly measured |
| si20a196 | Consequences at work because of providing care - Have you…had your work duties reduced, against your will? | directly measured |
| si20a197 | I [if (si20a108 = 1 and si20a188 = 1): find / if (si20a108 = 2) or (si20a108 = 1 and si20a188 = 2): found] it stressful to combine my work with providing care to [person 2]. | directly measured |
| si20a198 | By caring for [person 2], I have developed skills that [if (si20a108 = 1 and si20a188 = 1): make / if (si20a108 = 2) or (si20a108 = 1 and si20a188 = 2): made] me better at my work. | directly measured |
| si20a199 | I [if (si20a108 = 1 and si20a188 = 1): find / if (si20a108 = 2) or (si20a108 = 1 and si20a188 = 2): found] my work a relief for the distraction it [...] from assisting [person 2]. | directly measured |
| si20a200 | I often [if (si20a108 = 1 and si20a188 = 1): feel / if (si20a108 = 2) or (si20a108 = 1 and si20a188 = 2): felt] that caring for [person 2] [...] from my performance as an employee. | directly measured |
| si20a201 | [if (si20a108 = 1 and si20a188 = 1): Does / if (si20a108 = 2) or (si20a108 = 1 and si20a188 = 2): Did] your manager show any understanding with regard to your caring for [person 2]? [...] | directly measured |
| si20a202 | [if (si20a108 = 1 and si20a188 = 1): Do / if (si20a108 = 2) or (si20a108 = 1 and si20a188 = 2): Did] your direct colleagues show any understanding with regard to your caring for [person 2]? | directly measured |
| si20a203 | [...] To what extent [if (si20a108 = 1 and si20a188 = 1): can / if (si20a108 = 2) or (si20a108 = 1 and si20a188 = 2): could] you arrange your work flexibly to combine the care for [person 2] with your work [...]? | directly measured |
| si20a204 | Forms of support while providing care - Financial support (e.g. from the personal care budget, travel expense reimbursement) | directly measured |
| si20a205 | Forms of support while providing care - Provisions that temporarily [if si20a108 = 1: take / if si20a108 = 2: took] over the care for [person 2] (e.g. day activities, night care, volunteer care). | directly measured |
| si20a206 | Forms of support while providing care - Psychological support (e.g. peer support, training course, advice) | directly measured |
| si20a207 | Are you still providing care to [person 3] at present? | directly measured |
| si20a208 | What [if si20a207 = 1: is / if si20a207 = 2: is/was] the nature of your relationship to [person 3]? He or she [if si20a207 = 1: is / if si20a207 = 2: is/was] my... | directly measured |
| si20a209 | What [if si20a207 = 1: is / if si20a207 = 2: is/was] the nature of your relationship to [person 3]? He or she [if si20a207 = 1: is / if si20a207 = 2: is/was] my... - Other, namely | directly measured |
| si20a210 | Is [person 3] male or female? | directly measured |
| si20a211 | When did you start providing informal care to [person 3]? Month | directly measured |
| si20a212 | When did you start providing informal care to [person 3]? Year | directly measured |
| si20a213 | When did you stop providing care to [person 3]? Month | directly measured |
| si20a214 | When did you stop providing care to [person 3]? Year | directly measured |
| si20a215 | For what reason did you stop providing care to [person 3]? Please indicate the most important reason. | directly measured |
| si20a216 | For what reason did you stop providing care to [person 3]? Please indicate the most important reason. - Another reason, namely | directly measured |
| si20a217 | For how many hours a week, on average, did you provide care...at the start of the period in which you provided care to [person 3]? | directly measured |
| si20a218 | For how many hours a week, on average, did you provide care...[if si20a207 = 1: and how many hours do you spend now? / if si20a207 = 2: ...at the end of the period in which you provided care to [person 3]?] | directly measured |
| si20a219 | What tasks did you perform at the start of the period - Companionship or emotional support | directly measured |
| si20a220 | What tasks did you perform at the start of the period - Transportation | directly measured |
| si20a221 | What tasks did you perform at the start of the period - Assistance when visiting a doctor | directly measured |
| si20a222 | What tasks did you perform at the start of the period - Administrative help | directly measured |
| si20a223 | What tasks did you perform at the start of the period - Help with housekeeping | directly measured |
| si20a224 | What tasks did you perform at the start of the period - Personal care (e.g. showering or visiting the toilet) | directly measured |
| si20a225 | What tasks did you perform at the start of the period - Nursing care (e.g. administering medicine or tending to wounds) | directly measured |
| si20a226 | What tasks did you perform at the start of the period - Arranging or coordinating care | directly measured |
| si20a227 | What tasks did you perform at the start of the period - Other care | directly measured |
| si20a228 | Tasks performed [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Companionship or emotional support | directly measured |
| si20a229 | Tasks performed [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Transportation | directly measured |
| si20a230 | Tasks performed [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Assistance when visiting a doctor | directly measured |
| si20a231 | Tasks performed [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Administrative help | directly measured |
| si20a232 | Tasks performed [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Help with housekeeping | directly measured |
| si20a233 | Tasks performed [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Personal care (e.g. showering or visiting the toilet) | directly measured |
| si20a234 | Tasks performed [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Nursing care (e.g. administering medicine or tending to wounds) | directly measured |
| si20a235 | Tasks performed [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Arranging or coordinating care | directly measured |
| si20a236 | Tasks performed [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Other care | directly measured |
| si20a237 | Care of others at the start of the period - One or more other informal care givers | directly measured |
| si20a238 | Care of others at the start of the period - One or more volunteers | directly measured |
| si20a239 | Care of others at the start of the period - Home care workers or district nurses | directly measured |
| si20a240 | Care of others at the start of the period - A private help or domestic worker | directly measured |
| si20a241 | Care of others at the start of the period - Nursing staff in care institution or hospital | directly measured |
| si20a242 | Care of others at the start of the period - No one other than me | directly measured |
| si20a243 | Care of others [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - One or more other informal care givers | directly measured |
| si20a244 | Care of others [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - One or more volunteers | directly measured |
| si20a245 | Care of others [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Home care workers or district nurses | directly measured |
| si20a246 | Care of others [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - A private help or domestic worker | directly measured |
| si20a247 | Care of others [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Nursing staff in care institution or hospital | directly measured |
| si20a248 | Care of others [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - No one other than me | directly measured |
| si20a249 | Where did [person 3] live...at the start of the period in which you provided care to [person 3]? | directly measured |
| si20a250 | Where did [person 3] live...[if si20a207 = 1: ...and where does [person 3] live now? / if si20a207 = 2: ... at the end of the period in which you provided care to [person 3]?] | directly measured |
| si20a251 | To what extent did [person 3] have problems with regard to memory, to attention span, to thinking...at the start of the period in which you provided care to [person 3]? | directly measured |
| si20a252 | To what extent did [person 3] have problems with regard to memory, to attention span, to thinking...[if si20a207 = 1: ...and how is that now? / if si20a207 = 2: ... at the end of the period in which you provided care to [person 3]?] | directly measured |
| si20a253 | To what extent did [person 3] suffer from psychological problems, such as depression or a phobia...at the start of the period in which you provided care to [person 3]? | directly measured |
| si20a254 | To what extent did [person 3] suffer from psychological problems, such as depression or a phobia...[if si20a207 = 1: ...and how is that now? / if si20a207 = 2: ... at the end of the period in which you provided care to [person 3]?] | directly measured |
| si20a255 | Tasks that [person 3] was unable to perform independently at the start of the period - Walking | directly measured |
| si20a256 | Tasks that [person 3] was unable to perform independently at the start of the period - Dressing | directly measured |
| si20a257 | Tasks that [person 3] was unable to perform independently at the start of the period - Eating | directly measured |
| si20a258 | Tasks that [person 3] was unable to perform independently at the start of the period - Housekeeping | directly measured |
| si20a259 | Tasks that [person 3] was unable to perform independently at the start of the period - Grocery shopping | directly measured |
| si20a260 | Tasks that [person 3] was unable to perform independently at the start of the period - Preparing a meal | directly measured |
| si20a261 | Tasks that [person 3] was unable to perform independently at the start of the period - No problems with these activities | directly measured |
| si20a262 | Tasks that [person 3] is/was unable to perform independently [if si20a207=1: now / if si20a207=2: at the end of the period] - Walking | directly measured |
| si20a263 | Tasks that [person 3] is/was unable to perform independently [if si20a207=1: now / if si20a207=2: at the end of the period] - Dressing | directly measured |
| si20a264 | Tasks that [person 3] is/was unable to perform independently [if si20a207=1: now / if si20a207=2: at the end of the period] - Eating | directly measured |
| si20a265 | Tasks that [person 3] is/was unable to perform independently [if si20a207=1: now / if si20a207=2: at the end of the period] - Housekeeping | directly measured |
| si20a266 | Tasks that [person 3] is/was unable to perform independently [if si20a207=1: now / if si20a207=2: at the end of the period] - Grocery shopping | directly measured |
| si20a267 | Tasks that [person 3] is/was unable to perform independently [if si20a207=1: now / if si20a207=2: at the end of the period] - Preparing a meal | directly measured |
| si20a268 | Tasks that [person 3] is/was unable to perform independently [if si20a207=1: now / if si20a207=2: at the end of the period] - No problems with these activities | directly measured |
| si20a269 | How old [if si20a207 = 1: is / if si20a207 = 2: was] [person 3] [if si20a207 = 2: when you stopped providing informal care]? If you do not know exactly, please estimate his/her age. | directly measured |
| si20a270 | I [if si20a207 = 1: have / if si20a207 = 2: had] trouble combining my everyday activities (e.g. work, housekeeping, studying, family and leisure time) with my care activities for [person 3]. | directly measured |
| si20a271 | Caring for [person 3] [if si20a207 = 1: gives / if si20a207 = 2: gave] me a good feeling. | directly measured |
| si20a272 | I [if si20a207 = 1: find / if si20a207 = 2: found] it difficult to deal with [person 3], for instance because our relationship [if si20a207 = 1: has / if si20a207 = 2: had] changed or because [...] | directly measured |
| si20a273 | My contact with friends and acquaintances has reduced as a result of my providing care to [person 3]. | directly measured |
| si20a274 | By providing care, I [if si20a207 = 1: learn / if si20a207 = 2: learned] new things. | directly measured |
| si20a275 | I [if si20a207 = 1: find / if si20a207 = 2: found] it taxing to provide care to [person 3]. | directly measured |
| si20a276 | [person 3] and I have grown closer. | directly measured |
| si20a277 | My own choices in life have been restricted by the care need of [person 3]. | directly measured |
| si20a278 | My social environment [if si20a207 = 1: appreciates / if si20a207 = 2: appreciated] me for helping [person 3]. | directly measured |
| si20a279 | I [if si20a207 = 1: experience / if si20a207 = 2: experienced] loneliness as a result of my care activity. | directly measured |
| si20a280 | My social environment [if si20a207 = 1: helps / if si20a207 = 2: helped] me by taking over some of my tasks, other than the care for [person 3]. | directly measured |
| si20a281 | I [if si20a207 = 1: experience / if si20a207 = 2: experienced] the care for [person 3] as a duty. | directly measured |
| si20a282 | if si20a208 = 1: My relationship with [person 3] [if si20a207 = 1: is suffering / if si20a207 = 2: suffered] on account of my providing care to [him/her] / if si20a208 ≠1: My relationship with my (then) partner [...] | directly measured |
| si20a283 | I [if si20a207 = 1: feel / if si20a207 = 2: felt] that it’s the right thing to do. | directly measured |
| si20a284 | There [if si20a207 = 1: isn’t / if si20a207 = 2: wasn’t] anyone else available. | directly measured |
| si20a285 | I [if si20a207 = 1: enjoy / if si20a207 = 2: enjoyed] caring for someone. | directly measured |
| si20a286 | It [if si20a207 = 1: is / if si20a207 = 2: was] expected of me. | directly measured |
| si20a287 | [if si20a207 = 1: Have you had a paid job since providing care / if si20a207 = 2: Did you have a paid job during the period that you provided care] to [person 3]? | directly measured |
| si20a288 | Did you not have a paid job in that period, because you provided care to [person 3]? | directly measured |
| si20a289 | Did work situation change because of providing care you - Did you…start working less hours? | directly measured |
| si20a290 | Did work situation change because of providing care you - Did you…stop working? | directly measured |
| si20a291 | Did work situation change because of providing care you - Did you…start doing different work? | directly measured |
| si20a292 | Did work situation change because of providing care you - Did you…start working in self-employment? | directly measured |
| si20a293 | Did work situation change because of providing care you - Did you…stop attending an education program? | directly measured |
| si20a294 | Consequences at work because of providing care - Have you…missed out on being promoted or being awarded an assignment? | directly measured |
| si20a295 | Consequences at work because of providing care - Have you…had your work duties reduced, against your will? | directly measured |
| si20a296 | I [if (si20a207 = 1 and si20a287 = 1): find / if (si20a207 = 2) or (si20a207 = 1 and si20a287 = 2): found] it stressful to combine my work with providing care to [person 3]. | directly measured |
| si20a297 | By caring for [person 3], I have developed skills that [if (si20a207 = 1 and si20a287 = 1): make / if (si20a207 = 2) or (si20a207 = 1 and si20a287 = 2): made] me better at my work. | directly measured |
| si20a298 | I [if (si20a207 = 1 and si20a287 = 1): find / if (si20a207 = 2) or (si20a207 = 1 and si20a287 = 2): found] my work a relief for the distraction it [...] from assisting [person 3]. | directly measured |
| si20a299 | I often [if (si20a207 = 1 and si20a287 = 1): feel / if (si20a207 = 2) or (si20a207 = 1 and si20a287 = 2): felt] that caring for [person 3] [...] from my performance as an employee. | directly measured |
| si20a300 | [if (si20a207 = 1 and si20a287 = 1): Does / if (si20a207 = 2) or (si20a207 = 1 and si20a287 = 2): Did] your manager show any understanding with regard to your caring for [person 3]? [...] | directly measured |
| si20a301 | [if (si20a207 = 1 and si20a287 = 1): Do / if (si20a207 = 2) or (si20a207 = 1 and si20a287 = 2): Did] your direct colleagues show any understanding with regard to your caring for [person 3]? | directly measured |
| si20a302 | [...] To what extent [if (si20a207 = 1 and si20a287 = 1): can / if (si20a207 = 2) or (si20a207 = 1 and si20a287 = 2): could] you arrange your work flexibly to combine the care for [person 3] with your work [...]? | directly measured |
| si20a303 | Forms of support while providing care - Financial support (e.g. from the personal care budget, travel expense reimbursement) | directly measured |
| si20a304 | Forms of support while providing care - Provisions that temporarily [if si20a207 = 1: take / if si20a207 = 2: took] over the care for [person 3] (e.g. day activities, night care, volunteer care). | directly measured |
| si20a305 | Forms of support while providing care - Psychological support (e.g. peer support, training course, advice) | directly measured |
| si20a306 | Are you still providing care to [person 4] at present? | directly measured |
| si20a307 | What [if si20a306 = 1: is / if si20a306 = 2: is/was] the nature of your relationship to [person 4]? He or she [if si20a306 = 1: is / if si20a306 = 2: is/was] my... | directly measured |
| si20a308 | What [if si20a306 = 1: is / if si20a306 = 2: is/was] the nature of your relationship to [person 4]? He or she [if si20a306 = 1: is / if si20a306 = 2: is/was] my... - Other, namely | directly measured |
| si20a309 | Is [person 4] male or female? | directly measured |
| si20a310 | When did you start providing informal care to [person 4]? Month | directly measured |
| si20a311 | When did you start providing informal care to [person 4]? Year | directly measured |
| si20a312 | When did you stop providing care to [person 4]? Month | directly measured |
| si20a313 | When did you stop providing care to [person 4]? Year | directly measured |
| si20a314 | For what reason did you stop providing care to [person 4]? Please indicate the most important reason. | directly measured |
| si20a315 | For what reason did you stop providing care to [person 4]? Please indicate the most important reason. - Another reason, namely | directly measured |
| si20a316 | For how many hours a week, on average, did you provide care...at the start of the period in which you provided care to [person 4]? | directly measured |
| si20a317 | For how many hours a week, on average, did you provide care...[if si20a306 = 1: and how many hours do you spend now? / if si20a306 = 2: ...at the end of the period in which you provided care to [person 4]?] | directly measured |
| si20a318 | What tasks did you perform at the start of the period - Companionship or emotional support | directly measured |
| si20a319 | What tasks did you perform at the start of the period - Transportation | directly measured |
| si20a320 | What tasks did you perform at the start of the period - Assistance when visiting a doctor | directly measured |
| si20a321 | What tasks did you perform at the start of the period - Administrative help | directly measured |
| si20a322 | What tasks did you perform at the start of the period - Help with housekeeping | directly measured |
| si20a323 | What tasks did you perform at the start of the period - Personal care (e.g. showering or visiting the toilet) | directly measured |
| si20a324 | What tasks did you perform at the start of the period - Nursing care (e.g. administering medicine or tending to wounds) | directly measured |
| si20a325 | What tasks did you perform at the start of the period - Arranging or coordinating care | directly measured |
| si20a326 | What tasks did you perform at the start of the period - Other care | directly measured |
| si20a327 | Tasks performed [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Companionship or emotional support | directly measured |
| si20a328 | Tasks performed [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Transportation | directly measured |
| si20a329 | Tasks performed [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Assistance when visiting a doctor | directly measured |
| si20a330 | Tasks performed [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Administrative help | directly measured |
| si20a331 | Tasks performed [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Help with housekeeping | directly measured |
| si20a332 | Tasks performed [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Personal care (e.g. showering or visiting the toilet) | directly measured |
| si20a333 | Tasks performed [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Nursing care (e.g. administering medicine or tending to wounds) | directly measured |
| si20a334 | Tasks performed [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Arranging or coordinating care | directly measured |
| si20a335 | Tasks performed [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Other care | directly measured |
| si20a336 | Care of others at the start of the period - One or more other informal care givers | directly measured |
| si20a337 | Care of others at the start of the period - One or more volunteers | directly measured |
| si20a338 | Care of others at the start of the period - Home care workers or district nurses | directly measured |
| si20a339 | Care of others at the start of the period - A private help or domestic worker | directly measured |
| si20a340 | Care of others at the start of the period - Nursing staff in care institution or hospital | directly measured |
| si20a341 | Care of others at the start of the period - No one other than me | directly measured |
| si20a342 | Care of others [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - One or more other informal care givers | directly measured |
| si20a343 | Care of others [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - One or more volunteers | directly measured |
| si20a344 | Care of others [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Home care workers or district nurses | directly measured |
| si20a345 | Care of others [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - A private help or domestic worker | directly measured |
| si20a346 | Care of others [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Nursing staff in care institution or hospital | directly measured |
| si20a347 | Care of others [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - No one other than me | directly measured |
| si20a348 | Where did [person 4] live...at the start of the period in which you provided care to [person 4]? | directly measured |
| si20a349 | Where did [person 4] live...[if si20a306 = 1: ...and where does [person 4] live now? / if si20a306 = 2: ... at the end of the period in which you provided care to [person 4]?] | directly measured |
| si20a350 | To what extent did [person 4] have problems with regard to memory, to attention span, to thinking...at the start of the period in which you provided care to [person 4]? | directly measured |
| si20a351 | To what extent did [person 4] have problems with regard to memory, to attention span, to thinking...[if si20a306 = 1: ...and how is that now? / if si20a306 = 2: ... at the end of the period in which you provided care to [person 4]?] | directly measured |
| si20a352 | To what extent did [person 4] suffer from psychological problems, such as depression or a phobia...at the start of the period in which you provided care to [person 4]? | directly measured |
| si20a353 | To what extent did [person 4] suffer from psychological problems, such as depression or a phobia...[if si20a306 = 1: ...and how is that now? / if si20a306 = 2: ... at the end of the period in which you provided care to [person 4]?] | directly measured |
| si20a354 | Tasks that [person 4] was unable to perform independently at the start of the period - Walking | directly measured |
| si20a355 | Tasks that [person 4] was unable to perform independently at the start of the period - Dressing | directly measured |
| si20a356 | Tasks that [person 4] was unable to perform independently at the start of the period - Eating | directly measured |
| si20a357 | Tasks that [person 4] was unable to perform independently at the start of the period - Housekeeping | directly measured |
| si20a358 | Tasks that [person 4] was unable to perform independently at the start of the period - Grocery shopping | directly measured |
| si20a359 | Tasks that [person 4] was unable to perform independently at the start of the period - Preparing a meal | directly measured |
| si20a360 | Tasks that [person 4] was unable to perform independently at the start of the period - No problems with these activities | directly measured |
| si20a361 | Tasks that [person 4] is/was unable to perform independently [if si20a306=1: now / if si20a306=2: at the end of the period] - Walking | directly measured |
| si20a362 | Tasks that [person 4] is/was unable to perform independently [if si20a306=1: now / if si20a306=2: at the end of the period] - Dressing | directly measured |
| si20a363 | Tasks that [person 4] is/was unable to perform independently [if si20a306=1: now / if si20a306=2: at the end of the period] - Eating | directly measured |
| si20a364 | Tasks that [person 4] is/was unable to perform independently [if si20a306=1: now / if si20a306=2: at the end of the period] - Housekeeping | directly measured |
| si20a365 | Tasks that [person 4] is/was unable to perform independently [if si20a306=1: now / if si20a306=2: at the end of the period] - Grocery shopping | directly measured |
| si20a366 | Tasks that [person 4] is/was unable to perform independently [if si20a306=1: now / if si20a306=2: at the end of the period] - Preparing a meal | directly measured |
| si20a367 | Tasks that [person 4] is/was unable to perform independently [if si20a306=1: now / if si20a306=2: at the end of the period] - No problems with these activities | directly measured |
| si20a368 | How old [if si20a306 = 1: is / if si20a306 = 2: was] [person 4] [if si20a306 = 2: when you stopped providing informal care]? If you do not know exactly, please estimate his/her age. | directly measured |
| si20a369 | I [if si20a306 = 1: have / if si20a306 = 2: had] trouble combining my everyday activities (e.g. work, housekeeping, studying, family and leisure time) with my care activities for [person 4]. | directly measured |
| si20a370 | Caring for [person 4] [if si20a306 = 1: gives / if si20a306 = 2: gave] me a good feeling. | directly measured |
| si20a371 | I [if si20a306 = 1: find / if si20a306 = 2: found] it difficult to deal with [person 4], for instance because our relationship [if si20a306 = 1: has / if si20a306 = 2: had] changed or because [...] | directly measured |
| si20a372 | My contact with friends and acquaintances has reduced as a result of my providing care to [person 4]. | directly measured |
| si20a373 | By providing care, I [if si20a306 = 1: learn / if si20a306 = 2: learned] new things. | directly measured |
| si20a374 | I [if si20a306 = 1: find / if si20a306 = 2: found] it taxing to provide care to [person 4]. | directly measured |
| si20a375 | [person 4] and I have grown closer. | directly measured |
| si20a376 | My own choices in life have been restricted by the care need of [person 4]. | directly measured |
| si20a377 | My social environment [if si20a306 = 1: appreciates / if si20a306 = 2: appreciated] me for helping [person 4]. | directly measured |
| si20a378 | I [if si20a306 = 1: experience / if si20a306 = 2: experienced] loneliness as a result of my care activity. | directly measured |
| si20a379 | My social environment [if si20a306 = 1: helps / if si20a306 = 2: helped] me by taking over some of my tasks, other than the care for [person 4]. | directly measured |
| si20a380 | I [if si20a306 = 1: experience / if si20a306 = 2: experienced] the care for [person 4] as a duty. | directly measured |
| si20a381 | if si20a307 = 1: My relationship with [person 4] [if si20a306 = 1: is suffering / if si20a306 = 2: suffered] on account of my providing care to [him/her] / if si20a307 ≠1: My relationship with my (then) partner [...] | directly measured |
| si20a382 | I [if si20a306 = 1: feel / if si20a306 = 2: felt] that it’s the right thing to do. | directly measured |
| si20a383 | There [if si20a306 = 1: isn’t / if si20a306 = 2: wasn’t] anyone else available. | directly measured |
| si20a384 | I [if si20a306 = 1: enjoy / if si20a306 = 2: enjoyed] caring for someone. | directly measured |
| si20a385 | It [if si20a306 = 1: is / if si20a306 = 2: was] expected of me. | directly measured |
| si20a386 | [if si20a306 = 1: Have you had a paid job since providing care / if si20a306 = 2: Did you have a paid job during the period that you provided care] to [person 4]? | directly measured |
| si20a387 | Did you not have a paid job in that period, because you provided care to [person 4]? | directly measured |
| si20a388 | Did work situation change because of providing care you - Did you…start working less hours? | directly measured |
| si20a389 | Did work situation change because of providing care you - Did you…stop working? | directly measured |
| si20a390 | Did work situation change because of providing care you - Did you…start doing different work? | directly measured |
| si20a391 | Did work situation change because of providing care you - Did you…start working in self-employment? | directly measured |
| si20a392 | Did work situation change because of providing care you - Did you…stop attending an education program? | directly measured |
| si20a393 | Consequences at work because of providing care - Have you…missed out on being promoted or being awarded an assignment? | directly measured |
| si20a394 | Consequences at work because of providing care - Have you…had your work duties reduced, against your will? | directly measured |
| si20a395 | I [if (si20a306 = 1 and si20a386 = 1): find / if (si20a306 = 2) or (si20a306 = 1 and si20a386 = 2): found] it stressful to combine my work with providing care to [person 4]. | directly measured |
| si20a396 | By caring for [person 4], I have developed skills that [if (si20a306 = 1 and si20a386 = 1): make / if (si20a306 = 2) or (si20a306 = 1 and si20a386 = 2): made] me better at my work. | directly measured |
| si20a397 | I [if (si20a306 = 1 and si20a386 = 1): find / if (si20a306 = 2) or (si20a306 = 1 and si20a386 = 2): found] my work a relief for the distraction it [...] from assisting [person 4]. | directly measured |
| si20a398 | I often [if (si20a306 = 1 and si20a386 = 1): feel / if (si20a306 = 2) or (si20a306 = 1 and si20a386 = 2): felt] that caring for [person 4] [...] from my performance as an employee. | directly measured |
| si20a399 | [if (si20a306 = 1 and si20a386 = 1): Does / if (si20a306 = 2) or (si20a306 = 1 and si20a386 = 2): Did] your manager show any understanding with regard to your caring for [person 4]? [...] | directly measured |
| si20a400 | [if (si20a306 = 1 and si20a386 = 1): Do / if (si20a306 = 2) or (si20a306 = 1 and si20a386 = 2): Did] your direct colleagues show any understanding with regard to your caring for [person 4]? | directly measured |
| si20a401 | [...] To what extent [if (si20a306 = 1 and si20a386 = 1): can / if (si20a306 = 2) or (si20a306 = 1 and si20a386 = 2): could] you arrange your work flexibly to combine the care for [person 4] with your work [...]? | directly measured |
| si20a402 | Forms of support while providing care - Financial support (e.g. from the personal care budget, travel expense reimbursement) | directly measured |
| si20a403 | Forms of support while providing care - Provisions that temporarily [if si20a306 = 1: take / if si20a306 = 2: took] over the care for [person 4] (e.g. day activities, night care, volunteer care). | directly measured |
| si20a404 | Forms of support while providing care - Psychological support (e.g. peer support, training course, advice) | directly measured |
| si20a405 | Are you still providing care to [person 5] at present? | directly measured |
| si20a406 | What [if si20a405 = 1: is / if si20a405 = 2: is/was] the nature of your relationship to [person 5]? He or she [if si20a405 = 1: is / if si20a405 = 2: is/was] my... | directly measured |
| si20a407 | What [if si20a405 = 1: is / if si20a405 = 2: is/was] the nature of your relationship to [person 5]? He or she [if si20a405 = 1: is / if si20a405 = 2: is/was] my... - Other, namely | directly measured |
| si20a408 | Is [person 5] male or female? | directly measured |
| si20a409 | When did you start providing informal care to [person 5]? Month | directly measured |
| si20a410 | When did you start providing informal care to [person 5]? Year | directly measured |
| si20a411 | When did you stop providing care to [person 5]? Month | directly measured |
| si20a412 | When did you stop providing care to [person 5]? Year | directly measured |
| si20a413 | For what reason did you stop providing care to [person 5]? Please indicate the most important reason. | directly measured |
| si20a414 | For what reason did you stop providing care to [person 5]? Please indicate the most important reason. - Another reason, namely | directly measured |
| si20a415 | For how many hours a week, on average, did you provide care...at the start of the period in which you provided care to [person 5]? | directly measured |
| si20a416 | For how many hours a week, on average, did you provide care...[if si20a405 = 1: and how many hours do you spend now? / if si20a405 = 2: ...at the end of the period in which you provided care to [person 5]?] | directly measured |
| si20a417 | What tasks did you perform at the start of the period - Companionship or emotional support | directly measured |
| si20a418 | What tasks did you perform at the start of the period - Transportation | directly measured |
| si20a419 | What tasks did you perform at the start of the period - Assistance when visiting a doctor | directly measured |
| si20a420 | What tasks did you perform at the start of the period - Administrative help | directly measured |
| si20a421 | What tasks did you perform at the start of the period - Help with housekeeping | directly measured |
| si20a422 | What tasks did you perform at the start of the period - Personal care (e.g. showering or visiting the toilet) | directly measured |
| si20a423 | What tasks did you perform at the start of the period - Nursing care (e.g. administering medicine or tending to wounds) | directly measured |
| si20a424 | What tasks did you perform at the start of the period - Arranging or coordinating care | directly measured |
| si20a425 | What tasks did you perform at the start of the period - Other care | directly measured |
| si20a426 | Tasks performed [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Companionship or emotional support | directly measured |
| si20a427 | Tasks performed [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Transportation | directly measured |
| si20a428 | Tasks performed [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Assistance when visiting a doctor | directly measured |
| si20a429 | Tasks performed [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Administrative help | directly measured |
| si20a430 | Tasks performed [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Help with housekeeping | directly measured |
| si20a431 | Tasks performed [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Personal care (e.g. showering or visiting the toilet) | directly measured |
| si20a432 | Tasks performed [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Nursing care (e.g. administering medicine or tending to wounds) | directly measured |
| si20a433 | Tasks performed [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Arranging or coordinating care | directly measured |
| si20a434 | Tasks performed [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Other care | directly measured |
| si20a435 | Care of others at the start of the period - One or more other informal care givers | directly measured |
| si20a436 | Care of others at the start of the period - One or more volunteers | directly measured |
| si20a437 | Care of others at the start of the period - Home care workers or district nurses | directly measured |
| si20a438 | Care of others at the start of the period - A private help or domestic worker | directly measured |
| si20a439 | Care of others at the start of the period - Nursing staff in care institution or hospital | directly measured |
| si20a440 | Care of others at the start of the period - No one other than me | directly measured |
| si20a441 | Care of others [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - One or more other informal care givers | directly measured |
| si20a442 | Care of others [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - One or more volunteers | directly measured |
| si20a443 | Care of others [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Home care workers or district nurses | directly measured |
| si20a444 | Care of others [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - A private help or domestic worker | directly measured |
| si20a445 | Care of others [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Nursing staff in care institution or hospital | directly measured |
| si20a446 | Care of others [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - No one other than me | directly measured |
| si20a447 | Where did [person 5] live...at the start of the period in which you provided care to [person 5]? | directly measured |
| si20a448 | Where did [person 5] live...[if si20a405 = 1: ...and where does [person 5] live now? / if si20a405 = 2: ... at the end of the period in which you provided care to [person 5]?] | directly measured |
| si20a449 | To what extent did [person 5] have problems with regard to memory, to attention span, to thinking...at the start of the period in which you provided care to [person 5]? | directly measured |
| si20a450 | To what extent did [person 5] have problems with regard to memory, to attention span, to thinking...[if si20a405 = 1: ...and how is that now? / if si20a405 = 2: ... at the end of the period in which you provided care to [person 5]?] | directly measured |
| si20a451 | To what extent did [person 5] suffer from psychological problems, such as depression or a phobia...at the start of the period in which you provided care to [person 5]? | directly measured |
| si20a452 | To what extent did [person 5] suffer from psychological problems, such as depression or a phobia...[if si20a405 = 1: ...and how is that now? / if si20a405 = 2: ... at the end of the period in which you provided care to [person 5]?] | directly measured |
| si20a453 | Tasks that [person 5] was unable to perform independently at the start of the period - Walking | directly measured |
| si20a454 | Tasks that [person 5] was unable to perform independently at the start of the period - Dressing | directly measured |
| si20a455 | Tasks that [person 5] was unable to perform independently at the start of the period - Eating | directly measured |
| si20a456 | Tasks that [person 5] was unable to perform independently at the start of the period - Housekeeping | directly measured |
| si20a457 | Tasks that [person 5] was unable to perform independently at the start of the period - Grocery shopping | directly measured |
| si20a458 | Tasks that [person 5] was unable to perform independently at the start of the period - Preparing a meal | directly measured |
| si20a459 | Tasks that [person 5] was unable to perform independently at the start of the period - No problems with these activities | directly measured |
| si20a460 | Tasks that [person 5] is/was unable to perform independently [if si20a405=1: now / if si20a405=2: at the end of the period] - Walking | directly measured |
| si20a461 | Tasks that [person 5] is/was unable to perform independently [if si20a405=1: now / if si20a405=2: at the end of the period] - Dressing | directly measured |
| si20a462 | Tasks that [person 5] is/was unable to perform independently [if si20a405=1: now / if si20a405=2: at the end of the period] - Eating | directly measured |
| si20a463 | Tasks that [person 5] is/was unable to perform independently [if si20a405=1: now / if si20a405=2: at the end of the period] - Housekeeping | directly measured |
| si20a464 | Tasks that [person 5] is/was unable to perform independently [if si20a405=1: now / if si20a405=2: at the end of the period] - Grocery shopping | directly measured |
| si20a465 | Tasks that [person 5] is/was unable to perform independently [if si20a405=1: now / if si20a405=2: at the end of the period] - Preparing a meal | directly measured |
| si20a466 | Tasks that [person 5] is/was unable to perform independently [if si20a405=1: now / if si20a405=2: at the end of the period] - No problems with these activities | directly measured |
| si20a467 | How old [if si20a405 = 1: is / if si20a405 = 2: was] [person 5] [if si20a405 = 2: when you stopped providing informal care]? If you do not know exactly, please estimate his/her age. | directly measured |
| si20a468 | I [if si20a405 = 1: have / if si20a405 = 2: had] trouble combining my everyday activities (e.g. work, housekeeping, studying, family and leisure time) with my care activities for [person 5]. | directly measured |
| si20a469 | Caring for [person 5] [if si20a405 = 1: gives / if si20a405 = 2: gave] me a good feeling. | directly measured |
| si20a470 | I [if si20a405 = 1: find / if si20a405 = 2: found] it difficult to deal with [person 5], for instance because our relationship [if si20a405 = 1: has / if si20a405 = 2: had] changed or because [...] | directly measured |
| si20a471 | My contact with friends and acquaintances has reduced as a result of my providing care to [person 5]. | directly measured |
| si20a472 | By providing care, I [if si20a405 = 1: learn / if si20a405 = 2: learned] new things. | directly measured |
| si20a473 | I [if si20a405 = 1: find / if si20a405 = 2: found] it taxing to provide care to [person 5]. | directly measured |
| si20a474 | [person 5] and I have grown closer. | directly measured |
| si20a475 | My own choices in life have been restricted by the care need of [person 5]. | directly measured |
| si20a476 | My social environment [if si20a405 = 1: appreciates / if si20a405 = 2: appreciated] me for helping [person 5]. | directly measured |
| si20a477 | I [if si20a405 = 1: experience / if si20a405 = 2: experienced] loneliness as a result of my care activity. | directly measured |
| si20a478 | My social environment [if si20a405 = 1: helps / if si20a405 = 2: helped] me by taking over some of my tasks, other than the care for [person 5]. | directly measured |
| si20a479 | I [if si20a405 = 1: experience / if si20a405 = 2: experienced] the care for [person 5] as a duty. | directly measured |
| si20a480 | if si20a406 = 1: My relationship with [person 5] [if si20a405 = 1: is suffering / if si20a405 = 2: suffered] on account of my providing care to [him/her] / if si20a406 ≠1: My relationship with my (then) partner [...] | directly measured |
| si20a481 | I [if si20a405 = 1: feel / if si20a405 = 2: felt] that it’s the right thing to do. | directly measured |
| si20a482 | There [if si20a405 = 1: isn’t / if si20a405 = 2: wasn’t] anyone else available. | directly measured |
| si20a483 | I [if si20a405 = 1: enjoy / if si20a405 = 2: enjoyed] caring for someone. | directly measured |
| si20a484 | It [if si20a405 = 1: is / if si20a405 = 2: was] expected of me. | directly measured |
| si20a485 | [if si20a405 = 1: Have you had a paid job since providing care / if si20a405 = 2: Did you have a paid job during the period that you provided care] to [person 5]? | directly measured |
| si20a486 | Did you not have a paid job in that period, because you provided care to [person 5]? | directly measured |
| si20a487 | Did work situation change because of providing care you - Did you…start working less hours? | directly measured |
| si20a488 | Did work situation change because of providing care you - Did you…stop working? | directly measured |
| si20a489 | Did work situation change because of providing care you - Did you…start doing different work? | directly measured |
| si20a490 | Did work situation change because of providing care you - Did you…start working in self-employment? | directly measured |
| si20a491 | Did work situation change because of providing care you - Did you…stop attending an education program? | directly measured |
| si20a492 | Consequences at work because of providing care - Have you…missed out on being promoted or being awarded an assignment? | directly measured |
| si20a493 | Consequences at work because of providing care - Have you…had your work duties reduced, against your will? | directly measured |
| si20a494 | I [if (si20a405 = 1 and si20a485 = 1): find / if (si20a405 = 2) or (si20a405 = 1 and si20a485 = 2): found] it stressful to combine my work with providing care to [person 5]. | directly measured |
| si20a495 | By caring for [person 5], I have developed skills that [if (si20a405 = 1 and si20a485 = 1): make / if (si20a405 = 2) or (si20a405 = 1 and si20a485 = 2): made] me better at my work. | directly measured |
| si20a496 | I [if (si20a405 = 1 and si20a485 = 1): find / if (si20a405 = 2) or (si20a405 = 1 and si20a485 = 2): found] my work a relief for the distraction it [...] from assisting [person 5]. | directly measured |
| si20a497 | I often [if (si20a405 = 1 and si20a485 = 1): feel / if (si20a405 = 2) or (si20a405 = 1 and si20a485 = 2): felt] that caring for [person 5] [...] from my performance as an employee. | directly measured |
| si20a498 | [if (si20a405 = 1 and si20a485 = 1): Does / if (si20a405 = 2) or (si20a405 = 1 and si20a485 = 2): Did] your manager show any understanding with regard to your caring for [person 5]? [...] | directly measured |
| si20a499 | [if (si20a405 = 1 and si20a485 = 1): Do / if (si20a405 = 2) or (si20a405 = 1 and si20a485 = 2): Did] your direct colleagues show any understanding with regard to your caring for [person 5]? | directly measured |
| si20a500 | [...] To what extent [if (si20a405 = 1 and si20a485 = 1): can / if (si20a405 = 2) or (si20a405 = 1 and si20a485 = 2): could] you arrange your work flexibly to combine the care for [person 5] with your work [...]? | directly measured |
| si20a501 | Forms of support while providing care - Financial support (e.g. from the personal care budget, travel expense reimbursement) | directly measured |
| si20a502 | Forms of support while providing care - Provisions that temporarily [if si20a405 = 1: take / if si20a405 = 2: took] over the care for [person 5] (e.g. day activities, night care, volunteer care). | directly measured |
| si20a503 | Forms of support while providing care - Psychological support (e.g. peer support, training course, advice) | directly measured |
| si20a504 | Are you still providing care to [person 6] at present? | directly measured |
| si20a505 | What [if si20a504 = 1: is / if si20a504 = 2: is/was] the nature of your relationship to [person 6]? He or she [if si20a504 = 1: is / if si20a504 = 2: is/was] my... | directly measured |
| si20a506 | What [if si20a504 = 1: is / if si20a504 = 2: is/was] the nature of your relationship to [person 6]? He or she [if si20a504 = 1: is / if si20a504 = 2: is/was] my... - Other, namely | directly measured |
| si20a507 | Is [person 6] male or female? | directly measured |
| si20a508 | When did you start providing informal care to [person 6]? Month | directly measured |
| si20a509 | When did you start providing informal care to [person 6]? Year | directly measured |
| si20a510 | When did you stop providing care to [person 6]? Month | directly measured |
| si20a511 | When did you stop providing care to [person 6]? Year | directly measured |
| si20a512 | For what reason did you stop providing care to [person 6]? Please indicate the most important reason. | directly measured |
| si20a513 | For what reason did you stop providing care to [person 6]? Please indicate the most important reason. - Another reason, namely | directly measured |
| si20a514 | For how many hours a week, on average, did you provide care...at the start of the period in which you provided care to [person 6]? | directly measured |
| si20a515 | For how many hours a week, on average, did you provide care...[if si20a504 = 1: and how many hours do you spend now? / if si20a504 = 2: ...at the end of the period in which you provided care to [person 6]?] | directly measured |
| si20a516 | What tasks did you perform at the start of the period - Companionship or emotional support | directly measured |
| si20a517 | What tasks did you perform at the start of the period - Transportation | directly measured |
| si20a518 | What tasks did you perform at the start of the period - Assistance when visiting a doctor | directly measured |
| si20a519 | What tasks did you perform at the start of the period - Administrative help | directly measured |
| si20a520 | What tasks did you perform at the start of the period - Help with housekeeping | directly measured |
| si20a521 | What tasks did you perform at the start of the period - Personal care (e.g. showering or visiting the toilet) | directly measured |
| si20a522 | What tasks did you perform at the start of the period - Nursing care (e.g. administering medicine or tending to wounds) | directly measured |
| si20a523 | What tasks did you perform at the start of the period - Arranging or coordinating care | directly measured |
| si20a524 | What tasks did you perform at the start of the period - Other care | directly measured |
| si20a525 | Tasks performed [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Companionship or emotional support | directly measured |
| si20a526 | Tasks performed [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Transportation | directly measured |
| si20a527 | Tasks performed [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Assistance when visiting a doctor | directly measured |
| si20a528 | Tasks performed [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Administrative help | directly measured |
| si20a529 | Tasks performed [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Help with housekeeping | directly measured |
| si20a530 | Tasks performed [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Personal care (e.g. showering or visiting the toilet) | directly measured |
| si20a531 | Tasks performed [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Nursing care (e.g. administering medicine or tending to wounds) | directly measured |
| si20a532 | Tasks performed [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Arranging or coordinating care | directly measured |
| si20a533 | Tasks performed [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Other care | directly measured |
| si20a534 | Care of others at the start of the period - One or more other informal care givers | directly measured |
| si20a535 | Care of others at the start of the period - One or more volunteers | directly measured |
| si20a536 | Care of others at the start of the period - Home care workers or district nurses | directly measured |
| si20a537 | Care of others at the start of the period - A private help or domestic worker | directly measured |
| si20a538 | Care of others at the start of the period - Nursing staff in care institution or hospital | directly measured |
| si20a539 | Care of others at the start of the period - No one other than me | directly measured |
| si20a540 | Care of others [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - One or more other informal care givers | directly measured |
| si20a541 | Care of others [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - One or more volunteers | directly measured |
| si20a542 | Care of others [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Home care workers or district nurses | directly measured |
| si20a543 | Care of others [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - A private help or domestic worker | directly measured |
| si20a544 | Care of others [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Nursing staff in care institution or hospital | directly measured |
| si20a545 | Care of others [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - No one other than me | directly measured |
| si20a546 | Where did [person 6] live...at the start of the period in which you provided care to [person 6]? | directly measured |
| si20a547 | Where did [person 6] live...[if si20a504 = 1: ...and where does [person 6] live now? / if si20a504 = 2: ... at the end of the period in which you provided care to [person 6]?] | directly measured |
| si20a548 | To what extent did [person 6] have problems with regard to memory, to attention span, to thinking...at the start of the period in which you provided care to [person 6]? | directly measured |
| si20a549 | To what extent did [person 6] have problems with regard to memory, to attention span, to thinking...[if si20a504 = 1: ...and how is that now? / if si20a504 = 2: ... at the end of the period in which you provided care to [person 6]?] | directly measured |
| si20a550 | To what extent did [person 6] suffer from psychological problems, such as depression or a phobia...at the start of the period in which you provided care to [person 6]? | directly measured |
| si20a551 | To what extent did [person 6] suffer from psychological problems, such as depression or a phobia...[if si20a504 = 1: ...and how is that now? / if si20a504 = 2: ... at the end of the period in which you provided care to [person 6]?] | directly measured |
| si20a552 | Tasks that [person 6] was unable to perform independently at the start of the period - Walking | directly measured |
| si20a553 | Tasks that [person 6] was unable to perform independently at the start of the period - Dressing | directly measured |
| si20a554 | Tasks that [person 6] was unable to perform independently at the start of the period - Eating | directly measured |
| si20a555 | Tasks that [person 6] was unable to perform independently at the start of the period - Housekeeping | directly measured |
| si20a556 | Tasks that [person 6] was unable to perform independently at the start of the period - Grocery shopping | directly measured |
| si20a557 | Tasks that [person 6] was unable to perform independently at the start of the period - Preparing a meal | directly measured |
| si20a558 | Tasks that [person 6] was unable to perform independently at the start of the period - No problems with these activities | directly measured |
| si20a559 | Tasks that [person 6] is/was unable to perform independently [if si20a504=1: now / if si20a504=2: at the end of the period] - Walking | directly measured |
| si20a560 | Tasks that [person 6] is/was unable to perform independently [if si20a504=1: now / if si20a504=2: at the end of the period] - Dressing | directly measured |
| si20a561 | Tasks that [person 6] is/was unable to perform independently [if si20a504=1: now / if si20a504=2: at the end of the period] - Eating | directly measured |
| si20a562 | Tasks that [person 6] is/was unable to perform independently [if si20a504=1: now / if si20a504=2: at the end of the period] - Housekeeping | directly measured |
| si20a563 | Tasks that [person 6] is/was unable to perform independently [if si20a504=1: now / if si20a504=2: at the end of the period] - Grocery shopping | directly measured |
| si20a564 | Tasks that [person 6] is/was unable to perform independently [if si20a504=1: now / if si20a504=2: at the end of the period] - Preparing a meal | directly measured |
| si20a565 | Tasks that [person 6] is/was unable to perform independently [if si20a504=1: now / if si20a504=2: at the end of the period] - No problems with these activities | directly measured |
| si20a566 | How old [if si20a504 = 1: is / if si20a504 = 2: was] [person 6] [if si20a504 = 2: when you stopped providing informal care]? If you do not know exactly, please estimate his/her age. | directly measured |
| si20a567 | I [if si20a504 = 1: have / if si20a504 = 2: had] trouble combining my everyday activities (e.g. work, housekeeping, studying, family and leisure time) with my care activities for [person 6]. | directly measured |
| si20a568 | Caring for [person 6] [if si20a504 = 1: gives / if si20a504 = 2: gave] me a good feeling. | directly measured |
| si20a569 | I [if si20a504 = 1: find / if si20a504 = 2: found] it difficult to deal with [person 6], for instance because our relationship [if si20a504 = 1: has / if si20a504 = 2: had] changed or because [...] | directly measured |
| si20a570 | My contact with friends and acquaintances has reduced as a result of my providing care to [person 6]. | directly measured |
| si20a571 | By providing care, I [if si20a504 = 1: learn / if si20a504 = 2: learned] new things. | directly measured |
| si20a572 | I [if si20a504 = 1: find / if si20a504 = 2: found] it taxing to provide care to [person 6]. | directly measured |
| si20a573 | [person 6] and I have grown closer. | directly measured |
| si20a574 | My own choices in life have been restricted by the care need of [person 6]. | directly measured |
| si20a575 | My social environment [if si20a504 = 1: appreciates / if si20a504 = 2: appreciated] me for helping [person 6]. | directly measured |
| si20a576 | I [if si20a504 = 1: experience / if si20a504 = 2: experienced] loneliness as a result of my care activity. | directly measured |
| si20a577 | My social environment [if si20a504 = 1: helps / if si20a504 = 2: helped] me by taking over some of my tasks, other than the care for [person 6]. | directly measured |
| si20a578 | I [if si20a504 = 1: experience / if si20a504 = 2: experienced] the care for [person 6] as a duty. | directly measured |
| si20a579 | if si20a505 = 1: My relationship with [person 6] [if si20a504 = 1: is suffering / if si20a504 = 2: suffered] on account of my providing care to [him/her] / if si20a505 ≠1: My relationship with my (then) partner [...] | directly measured |
| si20a580 | I [if si20a504 = 1: feel / if si20a504 = 2: felt] that it’s the right thing to do. | directly measured |
| si20a581 | There [if si20a504 = 1: isn’t / if si20a504 = 2: wasn’t] anyone else available. | directly measured |
| si20a582 | I [if si20a504 = 1: enjoy / if si20a504 = 2: enjoyed] caring for someone. | directly measured |
| si20a583 | It [if si20a504 = 1: is / if si20a504 = 2: was] expected of me. | directly measured |
| si20a584 | [if si20a504 = 1: Have you had a paid job since providing care / if si20a504 = 2: Did you have a paid job during the period that you provided care] to [person 6]? | directly measured |
| si20a585 | Did you not have a paid job in that period, because you provided care to [person 6]? | directly measured |
| si20a586 | Did work situation change because of providing care you - Did you…start working less hours? | directly measured |
| si20a587 | Did work situation change because of providing care you - Did you…stop working? | directly measured |
| si20a588 | Did work situation change because of providing care you - Did you…start doing different work? | directly measured |
| si20a589 | Did work situation change because of providing care you - Did you…start working in self-employment? | directly measured |
| si20a590 | Did work situation change because of providing care you - Did you…stop attending an education program? | directly measured |
| si20a591 | Consequences at work because of providing care - Have you…missed out on being promoted or being awarded an assignment? | directly measured |
| si20a592 | Consequences at work because of providing care - Have you…had your work duties reduced, against your will? | directly measured |
| si20a593 | I [if (si20a504 = 1 and si20a584 = 1): find / if (si20a504 = 2) or (si20a504 = 1 and si20a584 = 2): found] it stressful to combine my work with providing care to [person 6]. | directly measured |
| si20a594 | By caring for [person 6], I have developed skills that [if (si20a504 = 1 and si20a584 = 1): make / if (si20a504 = 2) or (si20a504 = 1 and si20a584 = 2): made] me better at my work. | directly measured |
| si20a595 | I [if (si20a504 = 1 and si20a584 = 1): find / if (si20a504 = 2) or (si20a504 = 1 and si20a584 = 2): found] my work a relief for the distraction it [...] from assisting [person 6]. | directly measured |
| si20a596 | I often [if (si20a504 = 1 and si20a584 = 1): feel / if (si20a504 = 2) or (si20a504 = 1 and si20a584 = 2): felt] that caring for [person 6] [...] from my performance as an employee. | directly measured |
| si20a597 | [if (si20a504 = 1 and si20a584 = 1): Does / if (si20a504 = 2) or (si20a504 = 1 and si20a584 = 2): Did] your manager show any understanding with regard to your caring for [person 6]? [...] | directly measured |
| si20a598 | [if (si20a504 = 1 and si20a584 = 1): Do / if (si20a504 = 2) or (si20a504 = 1 and si20a584 = 2): Did] your direct colleagues show any understanding with regard to your caring for [person 6]? | directly measured |
| si20a599 | [...] To what extent [if (si20a504 = 1 and si20a584 = 1): can / if (si20a504 = 2) or (si20a504 = 1 and si20a584 = 2): could] you arrange your work flexibly to combine the care for [person 6] with your work [...]? | directly measured |
| si20a600 | Forms of support while providing care - Financial support (e.g. from the personal care budget, travel expense reimbursement) | directly measured |
| si20a601 | Forms of support while providing care - Provisions that temporarily [if si20a504 = 1: take / if si20a504 = 2: took] over the care for [person 6] (e.g. day activities, night care, volunteer care). | directly measured |
| si20a602 | Forms of support while providing care - Psychological support (e.g. peer support, training course, advice) | directly measured |
| si20a603 | Are you still providing care to [person 7] at present? | directly measured |
| si20a604 | What [if si20a603 = 1: is / if si20a603 = 2: is/was] the nature of your relationship to [person 7]? He or she [if si20a603 = 1: is / if si20a603 = 2: is/was] my... | directly measured |
| si20a605 | What [if si20a603 = 1: is / if si20a603 = 2: is/was] the nature of your relationship to [person 7]? He or she [if si20a603 = 1: is / if si20a603 = 2: is/was] my... - Other, namely | directly measured |
| si20a606 | Is [person 7] male or female? | directly measured |
| si20a607 | When did you start providing informal care to [person 7]? Month | directly measured |
| si20a608 | When did you start providing informal care to [person 7]? Year | directly measured |
| si20a609 | When did you stop providing care to [person 7]? Month | directly measured |
| si20a610 | When did you stop providing care to [person 7]? Year | directly measured |
| si20a611 | For what reason did you stop providing care to [person 7]? Please indicate the most important reason. | directly measured |
| si20a612 | For what reason did you stop providing care to [person 7]? Please indicate the most important reason. - Another reason, namely | directly measured |
| si20a613 | For how many hours a week, on average, did you provide care...at the start of the period in which you provided care to [person 7]? | directly measured |
| si20a614 | For how many hours a week, on average, did you provide care...[if si20a603 = 1: and how many hours do you spend now? / if si20a603 = 2: ...at the end of the period in which you provided care to [person 7]?] | directly measured |
| si20a615 | What tasks did you perform at the start of the period - Companionship or emotional support | directly measured |
| si20a616 | What tasks did you perform at the start of the period - Transportation | directly measured |
| si20a617 | What tasks did you perform at the start of the period - Assistance when visiting a doctor | directly measured |
| si20a618 | What tasks did you perform at the start of the period - Administrative help | directly measured |
| si20a619 | What tasks did you perform at the start of the period - Help with housekeeping | directly measured |
| si20a620 | What tasks did you perform at the start of the period - Personal care (e.g. showering or visiting the toilet) | directly measured |
| si20a621 | What tasks did you perform at the start of the period - Nursing care (e.g. administering medicine or tending to wounds) | directly measured |
| si20a622 | What tasks did you perform at the start of the period - Arranging or coordinating care | directly measured |
| si20a623 | What tasks did you perform at the start of the period - Other care | directly measured |
| si20a624 | Tasks performed [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Companionship or emotional support | directly measured |
| si20a625 | Tasks performed [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Transportation | directly measured |
| si20a626 | Tasks performed [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Assistance when visiting a doctor | directly measured |
| si20a627 | Tasks performed [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Administrative help | directly measured |
| si20a628 | Tasks performed [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Help with housekeeping | directly measured |
| si20a629 | Tasks performed [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Personal care (e.g. showering or visiting the toilet) | directly measured |
| si20a630 | Tasks performed [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Nursing care (e.g. administering medicine or tending to wounds) | directly measured |
| si20a631 | Tasks performed [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Arranging or coordinating care | directly measured |
| si20a632 | Tasks performed [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Other care | directly measured |
| si20a633 | Care of others at the start of the period - One or more other informal care givers | directly measured |
| si20a634 | Care of others at the start of the period - One or more volunteers | directly measured |
| si20a635 | Care of others at the start of the period - Home care workers or district nurses | directly measured |
| si20a636 | Care of others at the start of the period - A private help or domestic worker | directly measured |
| si20a637 | Care of others at the start of the period - Nursing staff in care institution or hospital | directly measured |
| si20a638 | Care of others at the start of the period - No one other than me | directly measured |
| si20a639 | Care of others [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - One or more other informal care givers | directly measured |
| si20a640 | Care of others [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - One or more volunteers | directly measured |
| si20a641 | Care of others [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Home care workers or district nurses | directly measured |
| si20a642 | Care of others [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - A private help or domestic worker | directly measured |
| si20a643 | Care of others [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Nursing staff in care institution or hospital | directly measured |
| si20a644 | Care of others [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - No one other than me | directly measured |
| si20a645 | Where did [person 7] live...at the start of the period in which you provided care to [person 7]? | directly measured |
| si20a646 | Where did [person 7] live...[if si20a603 = 1: ...and where does [person 7] live now? / if si20a603 = 2: ... at the end of the period in which you provided care to [person 7]?] | directly measured |
| si20a647 | To what extent did [person 7] have problems with regard to memory, to attention span, to thinking...at the start of the period in which you provided care to [person 7]? | directly measured |
| si20a648 | To what extent did [person 7] have problems with regard to memory, to attention span, to thinking...[if si20a603 = 1: ...and how is that now? / if si20a603 = 2: ... at the end of the period in which you provided care to [person 7]?] | directly measured |
| si20a649 | To what extent did [person 7] suffer from psychological problems, such as depression or a phobia...at the start of the period in which you provided care to [person 7]? | directly measured |
| si20a650 | To what extent did [person 7] suffer from psychological problems, such as depression or a phobia...[if si20a603 = 1: ...and how is that now? / if si20a603 = 2: ... at the end of the period in which you provided care to [person 7]?] | directly measured |
| si20a651 | Tasks that [person 7] was unable to perform independently at the start of the period - Walking | directly measured |
| si20a652 | Tasks that [person 7] was unable to perform independently at the start of the period - Dressing | directly measured |
| si20a653 | Tasks that [person 7] was unable to perform independently at the start of the period - Eating | directly measured |
| si20a654 | Tasks that [person 7] was unable to perform independently at the start of the period - Housekeeping | directly measured |
| si20a655 | Tasks that [person 7] was unable to perform independently at the start of the period - Grocery shopping | directly measured |
| si20a656 | Tasks that [person 7] was unable to perform independently at the start of the period - Preparing a meal | directly measured |
| si20a657 | Tasks that [person 7] was unable to perform independently at the start of the period - No problems with these activities | directly measured |
| si20a658 | Tasks that [person 7] is/was unable to perform independently [if si20a603=1: now / if si20a603=2: at the end of the period] - Walking | directly measured |
| si20a659 | Tasks that [person 7] is/was unable to perform independently [if si20a603=1: now / if si20a603=2: at the end of the period] - Dressing | directly measured |
| si20a660 | Tasks that [person 7] is/was unable to perform independently [if si20a603=1: now / if si20a603=2: at the end of the period] - Eating | directly measured |
| si20a661 | Tasks that [person 7] is/was unable to perform independently [if si20a603=1: now / if si20a603=2: at the end of the period] - Housekeeping | directly measured |
| si20a662 | Tasks that [person 7] is/was unable to perform independently [if si20a603=1: now / if si20a603=2: at the end of the period] - Grocery shopping | directly measured |
| si20a663 | Tasks that [person 7] is/was unable to perform independently [if si20a603=1: now / if si20a603=2: at the end of the period] - Preparing a meal | directly measured |
| si20a664 | Tasks that [person 7] is/was unable to perform independently [if si20a603=1: now / if si20a603=2: at the end of the period] - No problems with these activities | directly measured |
| si20a665 | How old [if si20a603 = 1: is / if si20a603 = 2: was] [person 7] [if si20a603 = 2: when you stopped providing informal care]? If you do not know exactly, please estimate his/her age. | directly measured |
| si20a666 | I [if si20a603 = 1: have / if si20a603 = 2: had] trouble combining my everyday activities (e.g. work, housekeeping, studying, family and leisure time) with my care activities for [person 7]. | directly measured |
| si20a667 | Caring for [person 7] [if si20a603 = 1: gives / if si20a603 = 2: gave] me a good feeling. | directly measured |
| si20a668 | I [if si20a603 = 1: find / if si20a603 = 2: found] it difficult to deal with [person 7], for instance because our relationship [if si20a603 = 1: has / if si20a603 = 2: had] changed or because [...] | directly measured |
| si20a669 | My contact with friends and acquaintances has reduced as a result of my providing care to [person 7]. | directly measured |
| si20a670 | By providing care, I [if si20a603 = 1: learn / if si20a603 = 2: learned] new things. | directly measured |
| si20a671 | I [if si20a603 = 1: find / if si20a603 = 2: found] it taxing to provide care to [person 7]. | directly measured |
| si20a672 | [person 7] and I have grown closer. | directly measured |
| si20a673 | My own choices in life have been restricted by the care need of [person 7]. | directly measured |
| si20a674 | My social environment [if si20a603 = 1: appreciates / if si20a603 = 2: appreciated] me for helping [person 7]. | directly measured |
| si20a675 | I [if si20a603 = 1: experience / if si20a603 = 2: experienced] loneliness as a result of my care activity. | directly measured |
| si20a676 | My social environment [if si20a603 = 1: helps / if si20a603 = 2: helped] me by taking over some of my tasks, other than the care for [person 7]. | directly measured |
| si20a677 | I [if si20a603 = 1: experience / if si20a603 = 2: experienced] the care for [person 7] as a duty. | directly measured |
| si20a678 | if si20a604 = 1: My relationship with [person 7] [if si20a603 = 1: is suffering / if si20a603 = 2: suffered] on account of my providing care to [him/her] / if si20a604 ≠1: My relationship with my (then) partner [...] | directly measured |
| si20a679 | I [if si20a603 = 1: feel / if si20a603 = 2: felt] that it’s the right thing to do. | directly measured |
| si20a680 | There [if si20a603 = 1: isn’t / if si20a603 = 2: wasn’t] anyone else available. | directly measured |
| si20a681 | I [if si20a603 = 1: enjoy / if si20a603 = 2: enjoyed] caring for someone. | directly measured |
| si20a682 | It [if si20a603 = 1: is / if si20a603 = 2: was] expected of me. | directly measured |
| si20a683 | [if si20a603 = 1: Have you had a paid job since providing care / if si20a603 = 2: Did you have a paid job during the period that you provided care] to [person 7]? | directly measured |
| si20a684 | Did you not have a paid job in that period, because you provided care to [person 7]? | directly measured |
| si20a685 | Did work situation change because of providing care you - Did you…start working less hours? | directly measured |
| si20a686 | Did work situation change because of providing care you - Did you…stop working? | directly measured |
| si20a687 | Did work situation change because of providing care you - Did you…start doing different work? | directly measured |
| si20a688 | Did work situation change because of providing care you - Did you…start working in self-employment? | directly measured |
| si20a689 | Did work situation change because of providing care you - Did you…stop attending an education program? | directly measured |
| si20a690 | Consequences at work because of providing care - Have you…missed out on being promoted or being awarded an assignment? | directly measured |
| si20a691 | Consequences at work because of providing care - Have you…had your work duties reduced, against your will? | directly measured |
| si20a692 | I [if (si20a603 = 1 and si20a683 = 1): find / if (si20a603 = 2) or (si20a603 = 1 and si20a683 = 2): found] it stressful to combine my work with providing care to [person 7]. | directly measured |
| si20a693 | By caring for [person 7], I have developed skills that [if (si20a603 = 1 and si20a683 = 1): make / if (si20a603 = 2) or (si20a603 = 1 and si20a683 = 2): made] me better at my work. | directly measured |
| si20a694 | I [if (si20a603 = 1 and si20a683 = 1): find / if (si20a603 = 2) or (si20a603 = 1 and si20a683 = 2): found] my work a relief for the distraction it [...] from assisting [person 7]. | directly measured |
| si20a695 | I often [if (si20a603 = 1 and si20a683 = 1): feel / if (si20a603 = 2) or (si20a603 = 1 and si20a683 = 2): felt] that caring for [person 7] [...] from my performance as an employee. | directly measured |
| si20a696 | [if (si20a603 = 1 and si20a683 = 1): Does / if (si20a603 = 2) or (si20a603 = 1 and si20a683 = 2): Did] your manager show any understanding with regard to your caring for [person 7]? [...] | directly measured |
| si20a697 | [if (si20a603 = 1 and si20a683 = 1): Do / if (si20a603 = 2) or (si20a603 = 1 and si20a683 = 2): Did] your direct colleagues show any understanding with regard to your caring for [person 7]? | directly measured |
| si20a698 | [...] To what extent [if (si20a603 = 1 and si20a683 = 1): can / if (si20a603 = 2) or (si20a603 = 1 and si20a683 = 2): could] you arrange your work flexibly to combine the care for [person 7] with your work [...]? | directly measured |
| si20a699 | Forms of support while providing care - Financial support (e.g. from the personal care budget, travel expense reimbursement) | directly measured |
| si20a700 | Forms of support while providing care - Provisions that temporarily [if si20a603 = 1: take / if si20a603 = 2: took] over the care for [person 7] (e.g. day activities, night care, volunteer care). | directly measured |
| si20a701 | Forms of support while providing care - Psychological support (e.g. peer support, training course, advice) | directly measured |
| si20a702 | Was it difficult to answer the questions? | directly measured |
| si20a703 | Were the questions sufficiently clear? | directly measured |
| si20a704 | Did the questionnaire get you thinking about things? | directly measured |
| si20a705 | Was it an interesting subject? | directly measured |
| si20a706 | Did you enjoy answering the questions? | directly measured |
| si20a707 | Starting date questionnaire | constructed |
| si20a708 | Starting time questionnair | constructed |
| si20a709 | End date questionnaire | constructed |
| si20a710 | End time questionnaire | constructed |
| si20a711 | Duration in seconds | derived |
Response Information
Response Overview
Selected number of household members: 3,499 (100.0%)Non-response: 438 (12.5%)
Response: 3,061 (87.5%)
Complete: 2,958 (84.5%)
Incomplete: 103 (2.9%)
Collection Events
Period
02-03-2020 to 31-03-2020
Sample
Panel members aged 16-78 who previously provided or currently provide informal care (screening questionnaire “Retrospectieve mantelzorgcarrières: screening”: v1 = 1 or v1 = 2).
Collection Mode
internet survey
Fieldwork Note
A reminder was sent twice to non-respondents
Publications
The impact of the COVID-19 lockdown on collecting informal caregiving data within the LISS Panel in March 2020 Radboud University Nijmegen, March, 2021; Raiber, K.,
et al.
Strategies of informal caregivers to adapt paid work European Societies, first published online May 4, 2023; Raiber, K.,
et al.